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SIENNA SIGNED

Stakeholder-informed ethics for new technologies with high socio-economic and human rights impact

Total Cost €

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EC-Contrib. €

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Partnership

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Project "SIENNA" data sheet

The following table provides information about the project.

Coordinator
UNIVERSITEIT TWENTE 

Organization address
address: DRIENERLOLAAN 5
city: ENSCHEDE
postcode: 7522 NB
website: www.utwente.nl

contact info
title: n.a.
name: n.a.
surname: n.a.
function: n.a.
email: n.a.
telephone: n.a.
fax: n.a.

 Coordinator Country Netherlands [NL]
 Project website http://www.sienna-project.eu/
 Total cost 3˙996˙787 €
 EC max contribution 3˙996˙787 € (100%)
 Programme 1. H2020-EU.5.g. (Take due and proportional precautions in research and innovation activities by anticipating and assessing potential environmental, health and safety impacts)
2. H2020-EU.5.f. (Develop the governance for the advancement of responsible research and innovation by all stakeholders, which is sensitive to society needs and demands and promote an ethics framework for research and innovation)
3. H2020-EU.5.c. (Integrate society in science and innovation issues, policies and activities in order to integrate citizens' interests and values and to increase the quality, relevance, social acceptability and sustainability of research and innovation outcomes in variou...)
 Code Call H2020-SwafS-2016-1
 Funding Scheme CSA
 Starting year 2017
 Duration (year-month-day) from 2017-10-01   to  2021-03-31

 Partnership

Take a look of project's partnership.

# participants  country  role  EC contrib. [€] 
1    UNIVERSITEIT TWENTE NL (ENSCHEDE) coordinator 1˙918˙937.00
2    UPPSALA UNIVERSITET SE (UPPSALA) participant 806˙555.00
3    TRILATERAL RESEARCH LTD UK (LONDON) participant 585˙937.00
4    EUREC OFFICE GUG DE (BONN) participant 201˙500.00
5    HELSINSKA FUNDACJA PRAW CZLOWIEKA PL (WARSZAWA) participant 155˙812.00
6    IONIAN UNIVERSITY EL (CORFU) participant 88˙587.00
7    UNIVERSIDAD DE GRANADA ES (GRANADA) participant 68˙550.00
8    FONDATION NATIONALE DES SCIENCES POLITIQUES FR (PARIS) participant 58˙900.00
9    UNIVERSITY OF CAPE TOWN ZA (RONDEBOSCH) participant 49˙072.00
10    UNIVERSIDADE FEDERAL DO RIO DE JANEIRO BR (RIO DE JANEIRO) participant 38˙497.00
11    Dalian University of Technology CN (Dalian) participant 24˙437.00
12    EUROPEAN NETWORK OF RESEARCH ETHICS COMMITTEES (EUREC) EV DE (BONN) participant 0.00

Map

 Project objective

SIENNA is a three and a half year project with 11 core partners and 2 associate partners, focussing on ethical and human rights challenges posed by human genomics, human enhancement and human-machine interaction technologies such as robots and smart devices. While these technologies offer significant benefits to individuals and society, they also present significant ethical challenges, e.g., in relation to human autonomy, equality, personal liberty, privacy, and accountability. In collaboration with a variety of stakeholders, SIENNA will identify and assess the ethical and socio-economic issues, public opinions, legal regulation and human rights implications of each technology. It will produce a framework for each of the three technologies that will form the basis for the development of research ethics protocols, professional ethical codes, and better ethical and legal frameworks. Before developing their recommendations, the partners will gather ethical views of experts and citizens towards the three technologies in four ways: (1) a major survey of citizens in 11 countries within and outside the EU; (2) panels of citizens in five countries; (3) interviews with experts and stakeholders; (4) workshops with stakeholders including scientists, ethicists, research ethics committees, professional organisations, civil society organisations, industry and policy makers. SIENNA will boost the EU’s leadership in developing ethical standards and support its vision of Responsible Research and Innovation (RRI) as a means to foster the design of inclusive research and innovation. The project will improve knowledge of the ethical, human rights and socio-economic impacts of the three technologies, while supporting ethical and responsible decision making by research ethics committees, scientific researchers and policy makers in the three areas. SIENNA will also create added value by generalising its methods for use in other emerging technological domains.

 Deliverables

List of deliverables.
Analysis of the legal and human rights requirements for genomics in and outside the EU Documents, reports 2020-04-25 01:23:17
Report of the human enhancement societal acceptance and awareness surveys Documents, reports 2020-04-25 01:20:41
Analysis of legal and human rights requirements for human enhancement in and outside the EU Documents, reports 2020-04-25 01:20:29
Report of the human enhancement citizen panels Documents, reports 2020-04-25 01:20:55
Analysis of the legal and human rights requirements for HMI in and outside the EU Documents, reports 2020-04-25 01:21:11
Report of the HMI societal acceptance and awareness surveys Documents, reports 2020-04-25 01:22:38
Report of the HMI citizen panels Documents, reports 2020-04-25 01:22:58
Ethical assessment of HMI Documents, reports 2020-04-25 01:21:33
Report of the genomics societal acceptance and awareness surveys Documents, reports 2020-04-25 01:23:50
Ethical assessment of genomics Documents, reports 2020-04-25 01:23:32
Report of the Genomics citizen panels Documents, reports 2020-04-25 01:20:15
Survey of REC approaches and codes for genomics Documents, reports 2020-02-25 17:38:49
Survey of REC approaches and codes for HMI (Formerly EUREC) Documents, reports 2020-02-25 17:38:49
Survey of REC approaches and codes for human enhancement (Formerly EUREC) Documents, reports 2020-02-25 17:38:49
State of the art review of genomics Documents, reports 2020-02-25 17:38:49
Press release Websites, patent fillings, videos etc. 2020-02-25 17:38:49
State-of-the-art review of human machine interactions Documents, reports 2020-02-25 17:38:48
The consortium’s methodological handbook (outlining its detailed approach) Documents, reports 2020-02-25 17:38:48
Website launch Websites, patent fillings, videos etc. 2020-02-25 17:38:48
Communication and dissemination plan Documents, reports 2020-02-25 17:38:48
State-of-the-art review of human enhancement Documents, reports 2020-02-25 17:38:49

Take a look to the deliverables list in detail:  detailed list of SIENNA deliverables.

 Publications

year authors and title journal last update
List of publications.
2018 Maria Canellopoulou-Bottis
The Greek Law on Genetics and Genomics - An Overview and Outlook for Future Perspectives
published pages: 1-20, ISSN: 1556-5068, DOI: 10.2139/ssrn.3295632
SSRN Electronic Journal Posted 22 Dec 2018 2020-02-25
2019 Josepine Fernow, Inigo De Miguel Beriain, Philip Brey, Bernd Stahl
Setting future ethical standards for ICT, Big Data, AI and robotics
published pages: 1-8, ISSN: 2515-8562, DOI: 10.29297/orbit.v2019i1.115
ORBIT Journal 2019/1 2020-02-25
2019 Santa Slokenberga and Heidi Carmen Howard
THE RIGHT TO SCIENCE AND HUMAN GERMLINE EDITING. Sweden, its external commitments and the ambiguous national responses under the Genetic Integrity Act
published pages: 199-222, ISSN: 0015-8585, DOI:
Förvaltningsrättslig tidskrift 2019 2 2020-02-25

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The information about "SIENNA" are provided by the European Opendata Portal: CORDIS opendata.

More projects from the same programme (H2020-EU.5.g.;H2020-EU.5.f.;H2020-EU.5.c.)

SIENNA (2017)

Stakeholder-informed ethics for new technologies with high socio-economic and human rights impact

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