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Teaser, summary, work performed and final results

Periodic Reporting for period 1 - CRISP (Citizenship, Recovery and Inclusive Society Partnership)

Teaser

People with mental health problems experience significant inequalities including high levels of early mortality, morbidity, unemployment, poverty, isolation and social exclusion. These severe disorders are inextricably intertwined with other poor outcomes, most notably related...

Summary

People with mental health problems experience significant inequalities including high levels of early mortality, morbidity, unemployment, poverty, isolation and social exclusion. These severe disorders are inextricably intertwined with other poor outcomes, most notably related to physical health, social support, and socioeconomic status. Studies have indicated that the life expectancy of men with mental disorders is 20 years shorter than in the general population, with the respective life expectancy gap for women being 15 years (Wahlbeck et al., 2011). This also presents major health, social and economic challenges to wider society. Neuropsychiatric and substance abuse disorders account for 13 percent of the global burden of disease and a recent study estimated the cost of loss of productivity will be $16 million dollars between 2011 and 2030 (World Health Organization, 2013).

Addressing the tremendous health, social and economic challenges to Europe caused by social exclusion of people with mental health problems – this innovative partnership brings together leaders in academia, policy, practice, business, community organisations and people with lived experience of mental health issues in order to reformulate how social exclusion is understood and addressed. We connect the leading organisations from the EU and U.S. to establish and embed a transatlantic network to identify and share state of the art knowledge and practice in the key factors that influence social exclusion of people with mental health problems - citizenship, recovery, stigma and public policy development.

Work performed

\"Work package 1: Citizenship & Participatory research

- Symposium entitled: “Recognition. Explorations in Equity, Justice and healthcare” was held at Yale University in May 2016.
- Special Issue of the American Journal of Psychiatric Rehabilitation completed “Citizenship: Social Approaches and Border Crossings in Contemporary Mental Health”
- 2017 IRCC Symposium entitled: “Recovering Citizenship: Innovations in Substance Use and Forensic Care” held at Yale in May 2017.
- Arts and citizenship was integrated into the citizenship/recovery seminars in May 2016 including a session on arts, citizenship, and mental health.
- CRISP partnered with the New Haven International Festival of Arts & Ideas on a “What is Citizenship?” panel discussion.
- Yale-Strathclyde partnership on translating citizenship interventions and research to the Scotland setting.

Work package 2: Recovery and person centred care

- A one day seminar on recovery was held at Yale University in May 2016.
- Paper published: “Shared-Decision Making within the Context of Recovery-Oriented Care”. Accepted by Mental Health Review Journal (April 5, 2017)
- Collaborations and knowledge exchange meetings in August 2016 and May 201 focused on the conceptualization of how to reconcile measurement and meaning in mental health services
- Manuscript: “Person-Centered Planning in Mental Health: A Transatlantic Collaboration to Tackle Implementation Barriers” Accepted to the special edition of the American Journal of Psychiatric Rehabilitation
- Presentation: On 11th December 2017, the NYU Silver School of Social Work\'s Mental Health Services Collaborative hosted a presentation on \"\"Meaningful or Measurable: How Outcomes Can Work for or Against Relational Practice\"\".

Work package 3

- In June 2016 an opening seminar on stigma and discrimination was held in Glasgow hosted by the Mental Health Foundation and Strathclyde.
- In June 2017 international workshop on the Honest, Open, Proud (HOP; formerly known as Coming Out Proud) program was held.
- 2 long term secondments from Ulm to IIT leading to review paper on stigma and disclosure and manuscript on self-stigma in workplace settings
- CRISP partners have presented their work at the 8th International Stigma Conference in Copenhagen, September 2017.
- Conceptual paper on human rights has been prepared.

Work package 4

- An initial meeting in Finland (10 October 2016, Helsinki) to scope policy areas and agree objectives. A seminar on the right to parenting was held in connection with the meeting.
- A policy forum was held in Germany (16 March 2017, Ulm) on participation of people with lived experience in formulation of labour policies.
- PhD & ESR secondment to Finland on the topic ‘action on determinants of health and well-being by civil society’ took place in September/October 2017.
- A workshop in was held in Finland on civic society actions on determinants of mental health (10 October 2017, Helsinki).
- A policy forum was held in Scotland (12 December 2017, Glasgow)
- The secondment exchange has resulted in several research grant proposals to funding calls of the Horizon 2020 programme.

Work package 5

- Development of a monitoring framework, support to the delivery of key events, and regular work package meetings and midterm meeting.
- A media event activities took place as part of the stigma seminar in Glasgow in June 2016.
- Transatlantic policy seminar was successfully held in New York in September 2016.
- Project website and blog was set up at www.crisppartnership.eu as well as a twitter account @EU_CRISP
- Further collaboration between project partners as evidenced by additional proposals submitted to the EU Horizon 2020 funding stream.

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Final results

Career and personal development
The project is realising the potential of participating individuals through providing new skills and career perspectives.

Sustainable international collaboration
The project is progressing well in the formation of sustainable international collaborative relationships. All of the exchanges have been productive and resulted in ongoing links. The events have been very well attended and are leading to the delivery of our core deliverables but also stimulating wider activities.

Conceptualisation of citizenship, recovery and rights
Through the exchange of international perspectives, the project is providing opportunities to all participants to further develop their conceptualisation of citizenship, recovery and rights. Publication in peer reviewed academic journals has involved international and inter-disciplinary co-authorship.

Mixed methods approaches to research and practice
Each of the work packages have involved sharing learning between researchers that employ different methodological approaches, including quantitative, qualitative and in-depth participatory methods.

Approaches to policy engagement
CRISP secondees have had the opportunity to meet and share ideas with policy makers at a national and EU level through seminar events and secondments in each of the work packages. This applies not only in European countries but also to city, state and federal policy makers’ involvement at U.S. events.

Developing public engagement strategies
The CRISP programme has led to sharing a number of innovative approaches to public engagement between partner countries. The use of the arts as a way of engaging large numbers of the public has been a major focus of the CRISP programme.

Publications arising from the project can be found at: https://www.mielenterveysseura.fi/en/development-projects/crisp/publications

Website & more info

More info: https://www.mielenterveysseura.fi/en/development-projects/citizenship-recovery-and-inclusive-society-partnership-crisp-0.