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Opendata, web and dolomites

MDS-RIGHT SIGNED

Providing the right care to the right patient with MyeloDysplastic Syndrome at the right time

Total Cost €

EC-Contrib. €

Partnership

Views

Outcomes and
results

MDS-RIGHT project word cloud

Explore the words cloud of the MDS-RIGHT project. It provides you a very rough idea of what is the project "MDS-RIGHT" about.

risk disease right invasive obtaining guidelines quality predictability cohort complicated imposes care relevance prospective supporting anaemia morbidities severe marrow personalised diagnosis establishment aging health population underpin medicine molecular minimally bone network myelodysplastic financial data introducing survival adjusted treatment registry enhanced tailoring chronic encompassing significantly compliance outcome options outcomes co malignancies decisions efficient elderly core patients incorporate mds interventions characterisation observational individual syndromes hc eumds hci refining correctly diagnostic sustainable burden raised hrqol lower stakeholders competence diagnosed newly regulatory worsen countries alongside physicians classification 16 1600 healthcare

Project "MDS-RIGHT" data sheet

The following table provides information about the project.

Coordinator	STICHTING KATHOLIEKE UNIVERSITEIT Organization address address: GEERT GROOTEPLEIN NOORD 9 city: NIJMEGEN postcode: 6525 EZ website: www.radboudumc.nl contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.
Coordinator Country	Netherlands [NL]
Project website	https://mds-right.eu/
Total cost	5˙999˙998 €
EC max contribution	5˙999˙997 € (100%)
Programme	1. H2020-EU.3.1.3. (Treating and managing disease)
Code Call	H2020-PHC-2014-two-stage
Funding Scheme	RIA
Starting year	2015
Duration (year-month-day)	from 2015-05-01 to 2020-04-30

Partnership

Take a look of project's partnership.

#	participants	country	role	EC contrib. [€]
1	STICHTING KATHOLIEKE UNIVERSITEIT STICHTING KATHOLIEKE UNIVERSITEIT Organization address address: GEERT GROOTEPLEIN NOORD 9 city: NIJMEGEN postcode: 6525 EZ website: www.radboudumc.nl contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	NL (NIJMEGEN)	coordinator	1˙869˙707.00
2	UNIVERSITY OF YORK UNIVERSITY OF YORK Organization address address: HESLINGTON city: YORK NORTH YORKSHIRE postcode: YO10 5DD website: http://www.york.ac.uk contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	UK (YORK NORTH YORKSHIRE)	participant	1˙292˙735.00
3	GROUPE FRANCOPHONE DES MYELODYSPLASIES GROUPE FRANCOPHONE DES MYELODYSPLASIES Organization address address: HOPITAL ST LOUIS SCE HEMATO SENIORS AVENUE CLAUDE VELLEFAUX 1 city: PARIS postcode: 75010 website: n.a. contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	FR (PARIS)	participant	589˙263.00
4	WESTFAELISCHE WILHELMS-UNIVERSITAET MUENSTER WESTFAELISCHE WILHELMS-UNIVERSITAET MUENSTER Organization address address: SCHLOSSPLATZ 2 city: MUENSTER postcode: 48149 website: n.a. contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	DE (MUENSTER)	participant	445˙311.00
5	STIFTUNG ELN FOUNDATION STIFTUNG ELN FOUNDATION Organization address address: PETTENKOFERSTRASSE 22 city: MANNHEIM postcode: 68169 website: n.a. contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	DE (MANNHEIM)	participant	417˙040.00
6	KAROLINSKA INSTITUTET KAROLINSKA INSTITUTET Organization address address: Nobels Vag 5 city: STOCKHOLM postcode: 17177 website: www.ki.se contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	SE (STOCKHOLM)	participant	340˙897.00
7	ACADEMISCH ZIEKENHUIS GRONINGEN ACADEMISCH ZIEKENHUIS GRONINGEN Organization address address: HANZEPLEIN 1 city: GRONINGEN postcode: 9713 GZ website: www.umcg.nl contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	NL (GRONINGEN)	participant	286˙943.00
8	UMIT- PRIVATE UNIVERSITAT FUER GESUNDHEITSWISSENSCHAFTEN, MEDIZINISCHEINFORMATIK UND TECHNIK GMBH UMIT- PRIVATE UNIVERSITAT FUER GESUNDHEITSWISSENSCHAFTEN, MEDIZINISCHEINFORMATIK UND TECHNIK GMBH Organization address address: EDUARD WALLNOEFER - ZENTRUM 1 city: HALL IN TIROL postcode: 6060 website: n.a. contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	AT (HALL IN TIROL)	participant	205˙303.00
9	UNIVERSITA DEGLI STUDI DI PAVIA UNIVERSITA DEGLI STUDI DI PAVIA Organization address address: STRADA NUOVA 65 city: PAVIA postcode: 27100 website: www.unipv.it contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	IT (PAVIA)	participant	152˙530.00
10	MEDIZINISCHE UNIVERSITAT INNSBRUCK MEDIZINISCHE UNIVERSITAT INNSBRUCK Organization address address: CHRISTOPH PROBST PLATZ 1 city: INNSBRUCK postcode: 6020 website: www.i-med.ac.at contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	AT (INNSBRUCK)	participant	144˙347.00
11	STICHTING VUMC STICHTING VUMC Organization address address: DE BOELELAAN 1117 city: AMSTERDAM postcode: 1081 HV website: www.vumc.nl contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	NL (AMSTERDAM)	participant	143˙218.00
12	FUNDACION INSTITUTO DE ESTUDIOS DE CIENCIAS DE LA SALUD DE CASTILLA Y LEON FUNDACION INSTITUTO DE ESTUDIOS DE CIENCIAS DE LA SALUD DE CASTILLA Y LEON Organization address address: PARQUE SANTA CLARA city: SORIA postcode: 42002 website: n.a. contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	ES (SORIA)	participant	35˙145.00
13	FUNDACION PARA LA INVESTIGACION DEL HOSPITAL UNIVERSITARIO LA FE DE LA COMUNIDAD VALENCIANA FUNDACION PARA LA INVESTIGACION DEL HOSPITAL UNIVERSITARIO LA FE DE LA COMUNIDAD VALENCIANA Organization address address: AV FERNANDO ABRIL MARTORELL 106 city: VALENCIA postcode: 46026 website: http://www.iislafe.es contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	ES (VALENCIA)	participant	35˙145.00
14	THE LEEDS TEACHING HOSPITALS NATIONAL HEALTH SERVICE TRUST THE LEEDS TEACHING HOSPITALS NATIONAL HEALTH SERVICE TRUST Organization address address: ST JAMES'S UNIVERSITY HOSPITAL, BECKETT STREET city: LEEDS postcode: LS9 7TF website: www.leedsteachinghospitals.com contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	UK (LEEDS)	participant	35˙145.00
15	FONDAZIONE G.I.M.EM.A. - FRANCO MANDELLI ONLUS FONDAZIONE G.I.M.EM.A. - FRANCO MANDELLI ONLUS Organization address address: VIA CASILINA 5 city: ROMA postcode: 182 website: n.a. contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	IT (ROMA)	participant	7˙265.00
16	STICHTING VU STICHTING VU Organization address address: DE BOELELAAN 1105 city: AMSTERDAM postcode: 1081 HV website: www.vu.nl contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	NL (AMSTERDAM)	participant	0.00

Map

Project objective

Myelodysplastic syndromes (MDS) are chronic bone marrow malignancies of the elderly, complicated by severe anaemia. MDS significantly affects quality-adjusted survival and it imposes an increasing financial burden on patients and healthcare (HC) systems. The burden of disease is expected to worsen in the future, given the aging EU population and newly identified MDS cases among those diagnosed with ‘Anaemia of the Elderly’. EUMDS - a unique registry with prospective, observational data on 1600 lower-risk MDS patients from 16 EU countries - enables comparison of existing MDS HC interventions (HCI). Objectives 1) Comparison of outcomes and costs of existing HCI, using established and new core outcome sets. This, alongside health technology assessment, will provide robust evidence to underpin sustainable use of HC resources; 2) Enhanced compliance with diagnostic procedures in MDS by introducing new minimally-invasive diagnostic methods. This will increase the number of correctly and timely diagnosed MDS patients; 3) Raised awareness of the relevance of obtaining the right diagnosis in elderly by comparing HRQoL between EUMDS and against a non-MDS cohort. This will improve HRQoL of individual patients through better tailoring of HCI; 4) Better outcome predictability of available HCI by refining classification of cases using molecular characterisation to incorporate response to HCI and to provide evidence for personalised medicine; 5) Improved, evidence-based, guidelines supporting the regulatory process, and providing information to patients and physicians to promote personalised decisions in MDS care; 6) Establishment of a European MDS competence network encompassing all stakeholders in the MDS field. Relevance Better treatment compliance, a more evidence-based use of HCI and an increasing tailored use of existing HC options will contribute to an efficient and cost effective (personalised) use of HC resources for elderly patients with MDS and their co-morbidities.

Deliverables

List of deliverables.
Report of ethical, legal, and socio-economical aspects of the elderly low risk MDS population	Documents, reports	2020-02-26 16:44:33
Periodic report on immunophenotyping in various cohorts	Documents, reports	2020-02-26 16:44:33
Report of two meetings on state-of-the-art in the field of MDS	Documents, reports	2020-02-26 16:44:33
Yearly updates of MDS website	Websites, patent fillings, videos etc.	2020-02-26 16:44:33
Report of early treatment response indicators supporting a targeted use of existing HCI	Demonstrators, pilots, prototypes	2020-02-26 16:44:32
Report describing prognostic impact of newly defined individual genetic defects on response to the existing HCI	Documents, reports	2020-02-26 16:44:32
Periodic report on mutational sequencing and epigenetic profiling in various cohorts	Documents, reports	2020-02-26 16:44:33
Periodic report on bioinformatic integration of data	Documents, reports	2020-02-26 16:44:32
Validation of a MDS-specific HRQoL questionnaire (QUALMS-1)	Documents, reports	2020-02-26 16:44:32
Final dataset incorporating data generated from WP2, WP3 & WP4	Documents, reports	2020-02-26 16:44:33
Promotion of educational and scientific meetings, pocket cards, posters, flyers, exhibition booth for meetings	Demonstrators, pilots, prototypes	2020-02-26 16:44:31
Scientific, Clinical and Ethics Advisory Board	Other	2020-02-26 16:44:31
Report on new COS including patient-reported, disease-specific outcomes	Documents, reports	2020-02-26 16:44:31
Discussion platforms and a common website for stakeholder interaction	Websites, patent fillings, videos etc.	2020-02-26 16:44:31
Approved European and International guidelines uploaded at new ELN-linked website	Documents, reports	2020-02-26 16:44:31
Completed catalogue of all MDS caregiver cooperative groups, patient support groups and existing documents	Documents, reports	2020-02-26 16:44:31
Operational project specific MDS-RIGHT website	Websites, patent fillings, videos etc.	2020-02-26 16:44:31

Take a look to the deliverables list in detail: detailed list of MDS-RIGHT deliverables.

Publications

List of publications.
year	authors and title	journal	last update
2019	Hanneke J.C.M. Wouters, Melanie M. van der Klauw, Theo de Witte, Reinhard Stauder, Dorine W. Swinkels, Bruce H.R. Wolffenbuttel, Gerwin Huls Association of anemia with health-related quality of life and survival: a large population-based cohort study published pages: 468-476, ISSN: 0390-6078, DOI: 10.3324/haematol.2018.195552	Haematologica 104/3	2020-03-05
2019	Valentin Goede, Reinhard Stauder Multidisciplinary care in the hematology clinic: Implementation of geriatric oncology published pages: 497-503, ISSN: 1879-4068, DOI: 10.1016/j.jgo.2018.09.003	Journal of Geriatric Oncology 10/3	2020-03-05
2019	Margot F. van Spronsen, Theresia M. Westers, Birgit I. Lissenberg-Witte, MariÃ«lle Wondergem, Gert J. Ossenkoppele, Arjan A. van de Loosdrecht The non-erythroid myeloblast count rule in myelodysplastic syndromes: fruitful or futile? published pages: e547-e550, ISSN: 0390-6078, DOI: 10.3324/haematol.2018.212563	Haematologica 104/12	2020-02-26
2017	Margot F. van Spronsen, Theresia M. Westers, Hanne Rozema, Gert J. Ossenkoppele, Robby E. Kibbelaar, Mels Hoogendoorn, Arjan A. van de Loosdrecht Validation of and proposals for refinements of the WHO 2016 classification for myelodysplastic syndromes published pages: E631-E634, ISSN: 0361-8609, DOI: 10.1002/ajh.24867	American Journal of Hematology 92/11	2020-02-26
2017	Howard S. Oster, Gal Carmi, Alex Kolomansky, Erel Joffe, Irit Kaye, Ilya Kirgner, Uri Greenbaum, Doron Comaneshter, Moshe Mittelman Is bone marrow examination always necessary to establish the diagnosis of myelodysplastic syndromes? A proposed non-invasive diagnostic model published pages: 2227-2232, ISSN: 1042-8194, DOI: 10.1080/10428194.2017.1416363	Leukemia & Lymphoma 59/9	2020-02-26
2019	Carolien Duetz, TheresiaÂ M. Westers, ArjanÂ A. vanÂ deÂ Loosdrecht Clinical Implication of Multi-Parameter Flow Cytometry in Myelodysplastic Syndromes published pages: 14-23, ISSN: 1015-2008, DOI: 10.1159/000490727	Pathobiology 86/1	2020-02-26
2019	Sylvain Barreau, Alexa S. Green, Charles Dussiau, Anneâ€Sophie Alary, Anna Raimbault, Stephanie Mathis, Lise Willems, Didier Bouscary, Olivier Kosmider, Valerie Bardet, Michaela Fontenay, Nicolas Chapuis Phenotypic landscape of granulocytes and monocytes by multiparametric flow cytometry: A prospective study of a 1â€tube panel strategy for diagnosis and prognosis of patients with MDS published pages: , ISSN: 1552-4949, DOI: 10.1002/cyto.b.21843	Cytometry Part B: Clinical Cytometry	2020-02-26
2018	Charles Dussiau, Michaela Fontenay Mechanisms underlying the heterogeneity of myelodysplastic syndromes published pages: 17-26, ISSN: 0301-472X, DOI: 10.1016/j.exphem.2017.10.004	Experimental Hematology 58	2020-02-26
2018	Uri Greenbaum, Erel Joffe, Kalman Filanovsky, Howard S. Oster, Ilya Kirgner, Itai Levi, Pia Raanani, Irit Avivi, Esther Manor, Gili Man-El, Moshe Mittelman Can bone marrow cellularity help in predicting prognosis in myelodysplastic syndromes? published pages: 502-507, ISSN: 0902-4441, DOI: 10.1111/ejh.13134	European Journal of Haematology 101/4	2020-02-26
2018	Tobias Johannes Brix, Philipp Bruland, Saad Sarfraz, Jan Ernsting, Philipp Neuhaus, Michael Storck, Justin Doods, Sonja StÃ¤nder, Martin Dugas ODM Data Analysisâ€”A tool for the automatic validation, monitoring and generation of generic descriptive statistics of patient data published pages: e0199242, ISSN: 1932-6203, DOI: 10.1371/journal.pone.0199242	PLOS ONE 13/6	2020-02-26
2018	Sarah Sandmann, Mohsen Karimi, Aniek O de Graaf, Christian Rohde, Stefanie GÃ¶llner, Julian Varghese, Jan Ernsting, Gunilla Walldin, Bert A van der Reijden, Carsten MÃ¼ller-Tidow, Luca Malcovati, Eva HellstrÃ¶m-Lindberg, Joop H Jansen, Martin Dugas appreci8: a pipeline for precise variant calling integrating 8 tools published pages: 4205-4212, ISSN: 1367-4803, DOI: 10.1093/bioinformatics/bty518	Bioinformatics 34/24	2020-02-26
2019	Carolien Duetz, Costa Bachas, Theresia M. Westers, Arjan A. van de Loosdrecht Computational analysis of flow cytometry data in hematological malignancies published pages: 1, ISSN: 1040-8746, DOI: 10.1097/cco.0000000000000607	Current Opinion in Oncology 32 (2020) [2019 Epub ahead of p	2020-02-26
2019	Louise de Swart, Simon Crouch, Marlijn Hoeks, Alex Smith, Saskia Langemeijer, Pierre Fenaux, Argiris Symeonidis, Jaroslav ÄŒermÃ¡k, Eva HellstrÃ¶m-Lindberg, Reinhard Stauder, Guillermo Sanz, Moshe Mittelman, Mette Skov Holm, Luca Malcovati, Krzysztof MÄ…dry, Ulrich Germing, Aurelia Tatic, Aleksandar Savic, Antonio Medina Almeida, NjetoÄka Gredelj-Å imec, Agnes Guerci-Bresler, Odile Beyne-Rauzy, D Impact of red blood cell transfusion dose density on progression-free survival in lower-risk myelodysplastic syndromes patients published pages: haematol.2018.21, ISSN: 0390-6078, DOI: 10.3324/haematol.2018.212217	Haematologica Haematologica 2019 Jun 6; Epub	2020-02-26
2019	Marlijn Hoeks, Ge Yu, Saskia Langemeijer, Simon Crouch, Louise de Swart, Pierre Fenaux, Argiris Symeonidis, Jaroslav ÄŒermÃ¡k, Eva HellstrÃ¶m-Lindberg, Guillermo Sanz, Reinhard Stauder, Mette Skov Holm, Moshe Mittelman, Krzysztof MÄ…dry, Luca Malcovati, Aurelia Tatic, Antonio Medina Almeida, Ulrich Germing, Aleksandar Savic, NjetoÄka Gredelj Å imec, Dominic Culligan, Raphael Itzykson, Agnes Guerc Impact of treatment with iron chelation therapy in patients with lower-risk myelodysplastic syndromes participating in the European MDS registry published pages: haematol.2018.21, ISSN: 0390-6078, DOI: 10.3324/haematol.2018.212332	Haematologica Haematologica 2019 Jul 5; Epub	2020-02-26
2017	Pedro da Silva-Coelho, Leonie I. Kroeze, Kenichi Yoshida, Theresia N. Koorenhof-Scheele, Ruth Knops, Louis T. van de Locht, Aniek O. de Graaf, Marion Massop, Sarah Sandmann, Martin Dugas, Marian J. Stevens-Kroef, Jaroslav Cermak, Yuichi Shiraishi, Kenichi Chiba, Hiroko Tanaka, Satoru Miyano, Theo de Witte, Nicole M. A. Blijlevens, Petra Muus, Gerwin Huls, Bert A. van der Reijden, Seishi Ogawa, Joop H. Jansen Clonal evolution in myelodysplastic syndromes published pages: 15099, ISSN: 2041-1723, DOI: 10.1038/ncomms15099	Nature Communications 8	2020-02-26
2017	de Swart L, Crouch S, Hoeks M, Smith A, Langemeijer S, Fenaux P, Symeonidis A, Cermak J, Stauder R, Mittelman M, Sanz G, Hellstrom-Lindberg E, Malcovati L, Holm MS, Germing U, Madry K, Almeida AM, Tatic A, Savic A, Gredelj-Å imec N, Guerci Bresler A, Culligan D, Itzykson R, Beyne-Rauzy O, Park S, van Marrewijk C, Blijlevens NMA Bowen DT, de Witte TM. Impact of Red Blood Cell Transfusion Intensity on Progression-Free Survival in Lower-Risk MDS Patients Included in the European Leukemianet MDS Registry published pages: \"#1690\", ISSN: , DOI:	Blood 130, S1	2020-02-26
2018	Daniel Moreno Berggren, Yasin Folkvaljon, Marie Engvall, Johan Sundberg, Mats Lambe, Petar Antunovic, Hege Garelius, Fryderyk Lorenz, Lars Nilsson, Bengt Rasmussen, SÃ¶ren Lehmann, Eva HellstrÃ¶m-Lindberg, Martin JÃ¤dersten, Elisabeth Ejerblad Prognostic scoring systems for myelodysplastic syndromes (MDS) in a population-based setting: a report from the Swedish MDS register published pages: 614-627, ISSN: 0007-1048, DOI: 10.1111/bjh.15243	British Journal of Haematology 181/5	2020-02-26
2017	Itzykson R, Crouch S, Smith A, Symeonidis A, Hellstrom-Lindberg E, Sanz G, Cermak J, Stauder R, Malcovati L, Germing U, Mittelman M, Langemeijer S, Madry K, Tatic A, Holm MS, Almeida AM, Savic A, Gredelj-Å imec N, LuÃ±o Fernandez E, Culligan D, Guerci Bresler A, van Marrewijk C, Bowen DT, de Witte TM, Fenaux P. A Prognostic Classifier Based on Early Platelet Drop in Lower-Risk MDS a Study from the European Leukemianet Lower-Risk MDS (EUMDS) Registry published pages: \"#158\", ISSN: , DOI:	Blood 130, S1	2020-02-26
2018	Marius WÃ¶ste, Martin Dugas VIPER: a web application for rapid expert review of variant calls published pages: 1928-1929, ISSN: 1367-4803, DOI: 10.1093/bioinformatics/bty022	Bioinformatics 34/11	2020-02-26
2017	Itzykson R, Smith A, Fenaux P, Symeonidis A, Mittelman M, Stauder R, Sanz G, Cermak J, Hellstrom-Lindberg E, Malcovati L, Langemeijer S, Germing U, Madry KM, Holm MS, Tatic A, Almeida AM, Savic A, Gredelj-Å imec N, Bowen D, de Witte T. Prognostic Value of Early Drop in Platelets in Lower-Risk MDS. A Sub-Study from the European Leukemianet Lower-Risk MDS (EUMDS) Registry published pages: \"#19, S10-11\", ISSN: , DOI:	Leukemia Research 55, S1	2020-02-26
2017	Sarah Sandmann, Aniek O. de Graaf, Mohsen Karimi, Bert A. van der Reijden, Eva HellstrÃ¶m-Lindberg, Joop H. Jansen, Martin Dugas Evaluating Variant Calling Tools for Non-Matched Next-Generation Sequencing Data published pages: 43169, ISSN: 2045-2322, DOI: 10.1038/srep43169	Scientific Reports 7	2020-02-26
2018	Thomas Patton, Chu-Mei Hung, Martin Henriksson, Mirjana HuiÄ‡, Ana PatrÃcia Marques, Sibylle Puntscher, ÄurÄ‘a VukiÄ‡eviÄ‡, Matteo Ruggeri, Andrea Manca Identifying Multinational Cost Data: A Methodological Review and Case Study published pages: , ISSN: , DOI:	EUHEA conference 2018, Maastricht July 2018	2020-02-26
2018	Stojkov I, Rochau U, Conrads-Frank A, Borba HH, Koinig KA, Arvandi M, Efficace F, Stauder R, Siebert U. Systematic Overview of Patient-Reported Outcomes for Myelodysplastic Syndromes published pages: , ISSN: , DOI:	17th Biennial European Conference of the Society for Medical Decision Making	2020-02-26
2017	de Swart L, Crouch S, Smith A, Fenaux P, Symeonidis A, Cermak J, Hellstrom-Lindberg E, Sanz G, Stauder R, Malcovati L, Germing U, Langemeijer S, Holm MS, Mittelman M, MÄ…dry K, Almeida A, Savic A, Itzykson R, Bowen D, de Witte T. Impact of Red Blood Cell Transfusions on Survival in Lower-Risk MDS Patients Included in the European Leukemianet MDS (EUMDS) Registry published pages: \"#280, S160-161, ISSN: , DOI:	Leukemia Research 55, S1	2020-02-26
2017	Sarah Sandmann, Aniek O. de Graaf, Martin Dugas BBCAnalyzer: a visual approach to facilitate variant calling published pages: , ISSN: 1471-2105, DOI: 10.1186/s12859-017-1549-4	BMC Bioinformatics 18/1	2020-02-26
2017	Stauder R, Yu G, Koinig K, Fenaux P, Symeonidis A, Sanz G, Cermak J, Mittelman M, Hellstrom-Lindberg E, Langemeijer S, Holm MS, Madry K, Malcovati L, Tatic A, Germing U, Savic A, Efficace F, Smith A, Bowen D, de Witte T. Health-Related Quality of Life Is Substantially Impaired in Lower-Risk MDS When Compared with Reference Populations and Significantly Affects Overall Survival published pages: \"#22, S12\", ISSN: , DOI:	Leukemia Research 55, S1	2020-02-26
2018	Hege Garelius, MD Registry studies on myelodysplastic syndrome and secondary acute myeloid leukemia published pages: , ISSN: , DOI:	4 May	2020-02-26
2018	Christian Scharenberg, MD The mutational landscape and microenvironment in Myelodysplastic Syndromes with deletion of chromosome 5q published pages: , ISSN: , DOI:	2 March	2020-02-26
2018	Hoeks M, Yu G, Langemeijer S, Crouch S, de Swart L, Fenaux P, Symeonidis A, Cermak J, Hellstrom-Lindberg E, Sanz G, Stauder R, Skov-Holm M, Mittelman M, Madry K, Malcovati L, Tatic A, Almeida AM, Germing U, Savic A, Gredelj-Å imec N, Culligan D, Itzykson R, Guerci-Bresler A, Slama B, van Marrewijk C, Droste J, van Kraaij M, Bowen DT, de Witte TM, Smith A. Impact van behandeling met ijzerchelatietherapie op patiÃ«nten met een laag-risico myelodysplastisch syndroom die deelnemen aan de Europese MDS registratie published pages: , ISSN: , DOI:	NVB-TRIP	2020-02-26
2018	Langemeijer S (& Hoeks M) IJzerchelatie bij laag-risico myelodysplsie published pages: , ISSN: 1572-1590, DOI:	Nederlands Tijdschrift voor Hematologie	2020-02-26
2017	Marius WÃ¶ste, Sarah Sandmann, Aniek de Graaf, Bert van der Reijden, Joop Jansen, and Martin Dugas Detecting small structural variants in amplicon-based NGS data - an evaluation of ten algorithms published pages: , ISSN: , DOI:	ISMB abstrats	2020-02-26
2017	Theo de Witte, David Bowen, Marie Robin, Luca Malcovati, Dietger Niederwieser, Ibrahim Yakoub-Agha, Ghulam J. Mufti, Pierre Fenaux, Guillermo Sanz, Rodrigo Martino, Emilio Paolo Alessandrino, Francesco Onida, Argiris Symeonidis, Jakob Passweg, Guido Kobbe, Arnold Ganser, Uwe Platzbecker, JÃ¼rgen Finke, Michel van Gelder, Arjan A. van de Loosdrecht, Per Ljungman, Reinhard Stauder, Liisa Volin, H. Joachim Deeg, Corey Cutler, Wael Saber, Richard Champlin, Sergio Giralt, Claudio Anasetti, Nicolaus KrÃ¶ger Allogeneic hematopoietic stem cell transplantation for MDS and CMML: recommendations from an international expert panel published pages: 1753-1762, ISSN: 0006-4971, DOI: 10.1182/blood-2016-06-724500	Blood 129/13	2020-02-26
2018	Gerbrig Berger, Leonie I. Kroeze, Theresia N. Koorenhof-Scheele, Aniek O. de Graaf, Kenichi Yoshida, Hiroo Ueno, Yuichi Shiraishi, Satoru Miyano, Eva van den Berg, Hein Schepers, Bert A. van der Reijden, Seishi Ogawa, Edo Vellenga, Joop H. Jansen Early detection and evolution of preleukemic clones in therapy-related myeloid neoplasms following autologous SCT published pages: 1846-1857, ISSN: 0006-4971, DOI: 10.1182/blood-2017-09-805879	Blood 131/16	2020-02-26
2018	Stojkov I, Conrads-Frank A, Rochau U, Koinig KA, Arvandi M, Efficace F, Stauder R, Siebert U Identifying Predictors for Low Health-Related Quality of Life in Patients with Myelodysplastic Syndromes â€“ Research Protocol published pages: , ISSN: , DOI:	Annual Conference of the German Network for Evidence-based Medicine	2020-02-26
2017	Christian Scharenberg, Valentina Giai, Andrea Pellagatti, Leonie Saft, Marios Dimitriou, Monika Jansson, Martin JÃ¤dersten, Alf Grandien, Iyadh Douagi, Donna S. Neuberg, Katarina LeBlanc, Jacqueline Boultwood, Mohsen Karimi, Sten Eirik W. Jacobsen, Petter S. Woll, Eva HellstrÃ¶m-Lindberg Progression in patients with low- and intermediate-1-risk del(5q) myelodysplastic syndromes is predicted by a limited subset of mutations published pages: 498-508, ISSN: 0390-6078, DOI: 10.3324/haematol.2016.152025	Haematologica 102/3	2020-02-26
2018	Hoeks M, Yu G, Langemeijer S, Crouch S, de Swart L, Fenaux P, Symeonidis A, Cermak J, Hellstrom-Lindberg E, Sanz G, Stauder R, Skov-Holm M, Mittelman M, Madry K, Malcovati L, Tatic A, Almeida AM, Germing U, Savic A, Gredelj-Å imec N, Culligan D, Itzykson R, Guerci-Bresler A, Slama B, van Marrewijk C, Droste J, van Kraaij M, Bowen DT, de Witte TM, Smith A. Impact of Treatment with Iron Chelation Therapy in Lower-Risk MDS Patients Participating in the European Leukemianet MDS (EUMDS) Registry published pages: , ISSN: , DOI:	Dutch Hematology Congress 2018 (Nederlands Tijdshrift voor Geneeskunde)	2020-02-26
2017	Sandmann S, de Graaf AO, Karimi M, van der Reijden BA, HellstrÃ¶m-Lindberg E, Jansen JH, Dugas M Benchmarking Variant Calling Tools for NGS Data published pages: , ISSN: , DOI:	F1000Research 6(ISCB Comm J):1353	2020-02-26
2018	Stojkov I, Rochau U, Conrads-Frank A, Koinig K.A., Arvandi M, Symeonidis A, Sanz G, Fenaux P, Bowen D, Mittelmann M, Garelius H, Germing U, van Marrewijk C , Cermak J, HellstrÃ¶m-Lindberg E, Smith A, de Witte T, Efficace F, Stauder R, Siebert U. Developing a Core Outcome Set for Myelodysplastic Syndromes - an International Delphi Survey published pages: , ISSN: , DOI:	40th Annual North American Meeting of the Society for Medical Decision Making october 2018	2020-02-26
2017	Hoeks M, Yu G, Langemeijer S, Crouch S, de Swart L, Fenaux P, Symeonidis A, Cermak J, Hellstrom-Lindberg E, Sanz G, Stauder R, Skov-Holm M, Mittelman M, Madry K, Malcovati L, Tatic A, Almeida AM, Germing U, Savic A, Gredelj-Å imec N, Culligan D, Itzykson R, Guerci-Bresler A, Slama B, van Marrewijk C, Droste J, van Kraaij M, Bowen DT, de Witte TM, Smith A. Impact of Treatment with Iron Chelation Therapy in Lower-Risk MDS Patients Participating in the European Leukemianet MDS (EUMDS) Registry published pages: \"#425\", ISSN: , DOI:	Blood 130, S1	2020-02-26
2017	Sandmann S, de Graaf AO, Karimi M, van der Reijden BA, HellstrÃ¶m-Lindberg E, Jansen JH, Dugas M Appreci8: a pipeline for precise variant calling integrating 8 tools published pages: , ISSN: , DOI:	Haematologica 102,S2, Jun 26	2020-02-26
2018	Wouters HJCM, Van der Klauw MM, de Witte T, Stauder R, Swinkels DW, Wolffenbuttel BHR, Huls G Impact of anemia on health-related quality of life depends on age and etiology published pages: , ISSN: , DOI:	Dutch Hematology Congress 2018 (Nederlands Tijdshrift voor Geneeskunde)	2020-02-26
2018	Stojkov I, Conrads-Frank A, Rochau U, Koinig KA, Arvandi M, Efficace F, Stauder R, Siebert U Deriving Core Outcomes for Myelodysplastic Syndromes â€“ Health Professionalsâ€™ Perspective published pages: , ISSN: , DOI:	Annual Conference of the German Network for Evidence-based Medicine	2020-02-26
2016	Stojkov I, Rochau U, Borba HH, Jevdjevic M, Koinig KA, Arvandi M, Efficace F, Stauder R, Siebert U. Systematic Review of Quality of Life Measurement Instruments and Response Criteria among Patients with Myelodysplastic Syndromes published pages: A596, ISSN: , DOI:	ISPOR 19th Annual European Congress 19/7	2020-02-26
2018	de Swart L, Hoeks M, Crouch S, Smith A, Langemeijer S, Fenaux P, Symeonidis A, Cermak J, Hellstrom-Lindberg E, Stauder R, Sanz G, Mittelman M, Holm MS, Malcovati L, Madry K, Germing U, Savic A, Almeida AM, Guerci Bresler A, Itzykson R, Beyne-Rauzy O, Culligan D, van Marrewijk C, Blijlevens NMA Bowen DT, de Witte TM. Impact of Red Blood Cell Transfusion Rate, Adjusted by Therapeutic interventions, on Progression-Free Survival in Lower-Risk MDS Patients within the European LeukemiaNet MDS Registry published pages: , ISSN: , DOI:	Haematologica 103, S1	2020-02-26
2018	Itzykson R, Crouch S, Malcovati L, Smith A, Symeonidis A, HellstrÃ¶m-Lindberg E, Sanz S, ÄŒermÃ¡k J, Stauder R, Travaglino E, Germing U, Mittelman M, Langemeijer S, MÄ…dry K, Tatic A, Holm MS, Medina Almeida A, Savic A, Gredelj Å imec N, LuÃ±o E, Culligan D, Guerci-Bresler A, Elena C, van Marrewijk C, Bowen D, de Witte TJ, Fenaux P on behalf of the European MDS Registry members Early platelet count kinetics has prognostic value in lower-risk MDS published pages: not yet known, ISSN: 2473-9537, DOI:	Blood Advances (accepted for publication) not yet known	2020-02-26
2018	Stojkov I, Conrads-Frank A, Rochau U, Koinig K.A., Arvandi M, Symeonidis A, Sanz G, Fenaux P, Bowen D, Mittelmann M, Garelius H, Germing U, van Marrewijk C , Cermak J, HellstrÃ¶m-Lindberg E, Smith A, de Witte T, Efficace F, Siebert U, Stauder R. Developing a Core Outcomes for Myelodysplastic Syndromes â€“ The MDS-RIGHT Health Professional Delphi Survey published pages: , ISSN: , DOI:	Haematologica 103, S1	2020-02-26
2017	Sarah Sandmann, Aniek O. de Graaf, Bert A. van der Reijden, Joop H. Jansen, Martin Dugas GLM-based optimization of NGS data analysis: A case study of Roche 454, Ion Torrent PGM and Illumina NextSeq sequencing data published pages: e0171983, ISSN: 1932-6203, DOI: 10.1371/journal.pone.0171983	PLOS ONE 12/2	2020-02-26
2018	Reinhard Stauder, Ge Yu, Karin A. Koinig, Tim Bagguley, Pierre Fenaux, Argiris Symeonidis, Guillermo Sanz, Jaroslav Cermak, Moshe Mittelman, Eva HellstrÃ¶m-Lindberg, Saskia Langemeijer, Mette Skov Holm, Krzysztof MÄ…dry, Luca Malcovati, Aurelia Tatic, Ulrich Germing, Aleksandar Savic, Corine van Marrewijk, AgnÃ¨s Guerci-Bresler, Elisa LuÃ±o, Jackie Droste, Fabio Efficace, Alex Smith, David Bowen, Theo de Witte Health-related quality of life in lower-risk MDS patients compared with age- and sex-matched reference populations: a European LeukemiaNet study published pages: 1380-1392, ISSN: 0887-6924, DOI: 10.1038/s41375-018-0089-x	Leukemia 32/6	2020-02-26
2016	Sarah Sandmann, Aniek de Graaf, Bert van der Reijden, Joop Jansen and Martin Dugas Confident Variant Calling in NGS Data â€“ A Mission Impossible? published pages: , ISSN: , DOI:	F1000Research	2020-02-26
2016	Marlijn Hoeks, Saskia Langemeijer, Louise De Swart, Tim Bagguley, Corine van Marrewijk, David Bowen, Jaroslav Cermak, Eva Hellstrom-Lindberg, Aurelia Tatic, Argiris Symeonidis, Marian G.J. Van Kraaij, Panagiotis Panagiotidis, Hege Garelius, Dominic J Culligan, Marta Krejci, Jackie Droste, Alexandra Smith, Dorine W. Swinkels and Theo de Witte Elevated Labile Plasma Iron Levels (LPI) and Increased Oxidative Stress Are Associated with Red Blood Cell Transfusions in Patients with Lower-Risk Myelodysplastic Syndromes (MDS) Subtitle: from the European Leukemianet MDS Registry published pages: 4327, ISSN: , DOI:	Blood 128	2020-02-26
2016	Eline M.P. Cremers, Theresia M. Westers, Canan Alhan, Claudia Cali, MariÃ«lle J. Wondergem, Pino J. Poddighe, Gert J. Ossenkoppele, Arjan A. van de Loosdrecht Multiparameter flow cytometry is instrumental to distinguish myelodysplastic syndromes from non-neoplastic cytopenias published pages: 49-56, ISSN: 0959-8049, DOI: 10.1016/j.ejca.2015.11.013	European Journal of Cancer 54	2020-02-26
2016	Margot F. van Spronsen, Gert J. Ossenkoppele, Theresia M. Westers, Arjan A. van de Loosdrecht Prognostic relevance of morphological classification models for myelodysplastic syndromes in an era of the revised International Prognostic Scoring System published pages: 10-20, ISSN: 0959-8049, DOI: 10.1016/j.ejca.2015.12.004	European Journal of Cancer 56	2020-02-26
2017	Louise de Swart, ChloÃ© Reiniers, Timothy Bagguley, Corine van Marrewijk, David Bowen, Eva HellstrÃ¶m-Lindberg, Aurelia Tatic, Argiris Symeonidis, Gerwin Huls, Jaroslav Cermak, Arjan A. van de Loosdrecht, Hege Garelius, Dominic Culligan, Mac Macheta, Michail Spanoudakis, Panagiotis Panagiotidis, Marta Krejci, Nicole Blijlevens, Saskia Langemeijer, Jackie Droste, Dorine W. Swinkels, Alex Smith, Theo de Witte Labile plasma iron levels predict survival in patients with lower-risk myelodysplastic syndromes published pages: 69-79, ISSN: 0390-6078, DOI: 10.3324/haematol.2017.171884	Haematologica 103/1	2020-02-26
2016	Saskia Langemeijer, Louise De Swart, Ge Yu, Alex Smith, Simon Crouch, Tom Johnston, Pierre Fenaux, Argiris Symeonidis, Jaroslav Cermak, Eva Hellstrom-Lindberg, Guillermo Sanz, Reinhard Stauder, Luca Malcovati, Ulrich Germing, Mette Skov Holm, Moshe Mittelman, Krzysztof Madry, Aurelia Tatic, Antonio Almeida, Aleksandar Savic, Sophie Park, Odile Beyne-Rauzy, RaphaÃ«l Itzykson, Corine van Marrewijk, David Bowen and Theo de Witte Impact of Treatment with Iron Chelators in Lower-Risk MDS Patients Participating in the European Leukemianet MDS (EUMDS) Registry published pages: 3186, ISSN: , DOI:	Blood 128	2020-02-26
2016	E. M. P. Cremers, T. M. Westers, C. Alhan, C. Cali, H. A. Visser-Wisselaar, D. A. Chitu, V. H. J. van der Velden, J. G. te Marvelde, S. K. Klein, P. Muus, E. Vellenga, G. E. De Greef, M.-C. C. J. C. Legdeur, P. W. Wijermans, M. J. P. L. Stevens-Kroef, P. da Silva-Coelho, J. H. Jansen, G. J. Ossenkoppele, A. A. van de Loosdrecht Implementation of erythroid lineage analysis by flow cytometry in diagnostic models for myelodysplastic syndromes published pages: , ISSN: 0390-6078, DOI: 10.3324/haematol.2016.147843	Haematologica	2020-02-26
2015	Sarah Sandmann, Aniek de Graaf, Bert van der Reijden, Joop Jansen and Martin Dugas Evaluating and Optimizing Variant Calling: A Comparison ofRoche 454, Ion Torrent PGM and Illumina NextSeq Sequencing Data published pages: , ISSN: , DOI:	F1000Research	2020-02-26
2016	Igor Stojkov, Ursula Rochau, Helena Borba, Milica Jevdjevic, Karin Koinig, Marjan Arvandi, Fabio Efficace, Reinhard Stauder, Uwe Siebert Systematic Overview of Response Criteria among Patients with Myelodysplastic Syndromes published pages: , ISSN: , DOI:	Society for Medical Decision Making, 38th Annual North American Meeting	2020-02-26
2016	Reinhard Stauder , Ge Yu , Tim Bagguley , Pierre Fenaux , Argiris Symeonidis , Guillermo Sanz , Jaroslav Cermak , Moshe Mittelman , Eva HellstrÃ¶m-Lindberg , Saskia Langemeijer , Mette Skov Holm , Krzysztof MÄ…dry , Luca Malcovati , Aurelia Tatic , Ulrich Germing , Aleksandar Savic , Corine van Marrewijk , AgnÃ¨s Guerci-Bresler , Elisa LuÃ±o , Jackie Droste , Karin Koinig , Alex Smith , David Bowen , Theo de Witte Comparison of 1690 MDS Patients from the European LeukemiaNet Registry and Reference Populations - Evidence for a Significant impairment in QoL in MDS and Definition of Predictors of Diminished QoL published pages: , ISSN: , DOI:	Hematologica Volume: 101 Pages: 16-17 Supp	2020-02-26
2016	H. K. G. Garelius, W. T. Johnston, A. G. Smith, S. Park, L. de Swart, P. Fenaux, A. Symeonidis, G. Sanz, J. ÄŒermÃ¡k, R. Stauder, L. Malcovati, M. Mittelman, A. A. van de Loosdrecht, C. J. van Marrewijk, D. Bowen, S. Crouch, T. J. M. de Witte, E. HellstrÃ¶m-Lindberg Erythropoiesis-stimulating agents significantly delay the onset of a regular transfusion need in nontransfused patients with lower-risk myelodysplastic syndrome published pages: , ISSN: 0954-6820, DOI: 10.1111/joim.12579	Journal of Internal Medicine	2020-02-26

Are you the coordinator (or a participant) of this project? Plaese send me more information about the "MDS-RIGHT" project.

For instance: the website url (it has not provided by EU-opendata yet), the logo, a more detailed description of the project (in plain text as a rtf file or a word file), some pictures (as picture files, not embedded into any word file), twitter account, linkedin page, etc.

Send me an email (fabio@fabiodisconzi.com) and I put them in your project's page as son as possible.

Thanks. And then put a link of this page into your project's website.

The information about "MDS-RIGHT" are provided by the European Opendata Portal: CORDIS opendata.