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E-Rare-3 SIGNED

ERA-NET rare disease research implementing IRDiRC objectives

Total Cost €

EC-Contrib. €

Partnership

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E-Rare-3 project word cloud

Explore the words cloud of the E-Rare-3 project. It provides you a very rough idea of what is the project "E-Rare-3" about.

disease countries health area exist group link scarcity efforts medicinal bodies scientific board difficult eurordis dimension committees policies million persons 26 diseases collaborative cooperation join invited scarce strengthen infrastructures expertise definition rare fund consolidated participative prime population patients promotion 8 citizens diagnosis delayed represented 6 combine scientists responsible guidelines 17 close efficient international few calls building profits irdirc extend members joint translated lack eucerd care advisory translate 7000 transnational jtcs rd

Project "E-Rare-3" data sheet

The following table provides information about the project.

Coordinator	AGENCE NATIONALE DE LA RECHERCHE Organization address address: 50 avenue Daumesnil city: PARIS postcode: 75012 website: www.agence-nationale-recherche.fr contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.
Coordinator Country	France [FR]
Total cost	23˙290˙000 €
EC max contribution	5˙884˙310 € (25%)
Programme	1. H2020-EU.3.1.3. (Treating and managing disease)
Code Call	H2020-HCO-2014
Funding Scheme	ERA-NET-Cofund
Starting year	2014
Duration (year-month-day)	from 2014-12-01 to 2020-11-30

Partnership

Take a look of project's partnership.

#	participants	country	role	EC contrib. [€]
1	AGENCE NATIONALE DE LA RECHERCHE AGENCE NATIONALE DE LA RECHERCHE Organization address address: 50 avenue Daumesnil city: PARIS postcode: 75012 website: www.agence-nationale-recherche.fr contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	FR (PARIS)	coordinator	710˙253.00
2	BUNDESMINISTERIUM FUER BILDUNG UND FORSCHUNG BUNDESMINISTERIUM FUER BILDUNG UND FORSCHUNG Organization address address: Heinemannstrasse 2 city: BONN postcode: 53175 website: www.bmbf.de contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	DE (BONN)	participant	1˙035˙870.00
3	ZORGONDERZOEK NEDERLAND ZON ZORGONDERZOEK NEDERLAND ZON Organization address address: Laan Van Nieuw Oost Indie 334 city: DEN HAAG postcode: 2593CE website: http://www.zonmw.nl/ contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	NL (DEN HAAG)	participant	645˙129.00
4	DEUTSCHE FORSCHUNGSGEMEINSCHAFT DEUTSCHE FORSCHUNGSGEMEINSCHAFT Organization address address: Kennedyallee 40 city: BONN postcode: 53175 website: www.dfg.de contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	DE (BONN)	participant	384˙635.00
5	MINISTERO DELLA SALUTE MINISTERO DELLA SALUTE Organization address address: Via Giorgio Ribotta 5 city: ROMA postcode: 144 website: www.salute.gov.it contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	IT (ROMA)	participant	384˙635.00
6	TURKIYE BILIMSEL VE TEKNOLOJIK ARASTIRMA KURUMU TURKIYE BILIMSEL VE TEKNOLOJIK ARASTIRMA KURUMU Organization address address: Ataturk Bulvari 221 city: ANKARA postcode: 6100 website: www.tubitak.gov.tr contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	TR (ANKARA)	participant	384˙635.00
7	FONDS ZUR FÖRDERUNG DER WISSENSCHAFTLICHEN FORSCHUNG FONDS ZUR FÖRDERUNG DER WISSENSCHAFTLICHEN FORSCHUNG Organization address address: SENSENGASSE 1 city: WIEN postcode: 1090 website: www.fwf.ac.at contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	AT (WIEN)	participant	303˙231.00
8	REGIONE EMILIA ROMAGNA REGIONE EMILIA ROMAGNA Organization address address: Via Aldo Moro 52 city: BOLOGNA postcode: 40127 website: http://asr.regione.emilia-romagna.it contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	IT (BOLOGNA)	participant	303˙231.00
9	INSTITUTO DE SALUD CARLOS III INSTITUTO DE SALUD CARLOS III Organization address address: MONFORTE DE LEMOS 5 city: MADRID postcode: 28029 website: http://www.isciii.es contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	ES (MADRID)	participant	221˙827.00
10	NARODOWE CENTRUM BADAN I ROZWOJU NARODOWE CENTRUM BADAN I ROZWOJU Organization address address: UL. NOWOGRODZKA 47A city: WARSZAWA postcode: 00 695 website: www.ncbr.gov.pl contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	PL (WARSZAWA)	participant	221˙827.00
11	Unitatea Executiva pentru Finantarea Invatamantului Superior, a Cercetarii, Dezvoltarii si Inovarii Unitatea Executiva pentru Finantarea Invatamantului Superior, a Cercetarii, Dezvoltarii si Inovarii Organization address address: Mendeleev Street 21-25 city: Bucharest postcode: 10362 website: www.uefiscsu.ro, www.cncsis.ro contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	RO (Bucharest)	participant	221˙827.00
12	FUNDACAO PARA A CIENCIA E A TECNOLOGIA FUNDACAO PARA A CIENCIA E A TECNOLOGIA Organization address address: AVENIDA D CARLOS I 126 city: LISBOA postcode: 1249 074 website: www.fct.pt contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	PT (LISBOA)	participant	164˙844.00
13	GENIKI GRAMMATIA EREVNAS KAI TECHNOLOGIAS GENIKI GRAMMATIA EREVNAS KAI TECHNOLOGIAS Organization address address: Mesogeion Avenue 14-18 city: ATHENS postcode: 11510 website: www.gsrt.gr contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	EL (ATHENS)	participant	150˙597.00
14	FEDERAAL FONDS VOOR WETENSCHAPPELIJK ONDERZOEK FEDERAAL FONDS VOOR WETENSCHAPPELIJK ONDERZOEK Organization address address: RUE D'EGMONT 5 city: BRUXELLES postcode: 1000 website: n.a. contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	BE (BRUXELLES)	participant	137˙166.00
15	MINISTRY OF HEALTH MINISTRY OF HEALTH Organization address address: YIRMIYAHU 39 city: JERUSALEM postcode: 9101002 website: www.health.gov.il contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	IL (JERUSALEM)	participant	137˙166.00
16	VALSTS IZGLITIBAS ATTISTIBAS AGENTURA VALSTS IZGLITIBAS ATTISTIBAS AGENTURA Organization address address: VALNU IELA 1 city: RIGA postcode: 1050 website: www.viaa.gov.lv contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	LV (RIGA)	participant	127˙398.00
17	FONDS VOOR WETENSCHAPPELIJK ONDERZOEK-VLAANDEREN FONDS VOOR WETENSCHAPPELIJK ONDERZOEK-VLAANDEREN Organization address address: EGMONTSTRAAT 5 city: BRUSSEL postcode: 1000 website: www.fwo.be contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	BE (BRUSSEL)	participant	124˙142.00
18	NEMZETI KUTATASI FEJLESZTESI ES INNOVACIOS HIVATAL NEMZETI KUTATASI FEJLESZTESI ES INNOVACIOS HIVATAL Organization address address: KETHLY ANNA TER 1 city: BUDAPEST postcode: 1077 website: www.nih.gov.hu contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	HU (BUDAPEST)	participant	107˙861.00
19	DEUTSCHES ZENTRUM FUER LUFT - UND RAUMFAHRT EV DEUTSCHES ZENTRUM FUER LUFT - UND RAUMFAHRT EV Organization address address: Linder Hoehe city: KOELN postcode: 51147 website: www.dlr.de contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	DE (KOELN)	participant	59˙018.00
20	ISTITUTO SUPERIORE DI SANITA ISTITUTO SUPERIORE DI SANITA Organization address address: Viale Regina Elena 299 city: ROMA postcode: 161 website: http://www.iss.it contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	IT (ROMA)	participant	59˙018.00
21	CANADIAN INSTITUTES OF HEALTH RESEARCH CANADIAN INSTITUTES OF HEALTH RESEARCH Organization address address: ELGIN STREET 9TH FLOOR ADDRESS LOCATOR 4809A 160 city: OTTAWA ONTARIO postcode: K1T 4H8 website: www.cihr-irsc.gc.ca contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	CA (OTTAWA ONTARIO)	participant	0.00
22	FONDS DE RECHERCHE DU QUEBEC - SANTE FONDS DE RECHERCHE DU QUEBEC - SANTE Organization address address: RUE SHERBROOKE OUEST 500 city: MONTREAL QUEBEC postcode: H3A3C6 website: www.frsq.gouv.qc.ca contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	CA (MONTREAL QUEBEC)	participant	0.00
23	GENOME CANADA GENOME CANADA Organization address address: 150 METCALFE STREET SUITE 2100 city: OTTAWA postcode: K2P 1P1 website: n.a. contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	CA (OTTAWA)	participant	0.00
24	LATVIJAS ZINATNU AKADEMIJA LATVIJAS ZINATNU AKADEMIJA Organization address address: AKADEMIJAS LAUKUMS 1 city: RIGA postcode: 1050 website: http://www.lza.lv contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	LV (RIGA)	participant	0.00
25	ORSZAGOS TUDOMANYOS KUTATASI ALAPPROGRAMOK IRODA ORSZAGOS TUDOMANYOS KUTATASI ALAPPROGRAMOK IRODA Organization address address: CZUCZOR 10 city: BUDAPEST postcode: 1093 website: www.otka.hu contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	HU (BUDAPEST)	participant	0.00
26	OSTERREICHISCHE FORSCHUNGSFORDERUNGSGESELLSCHAFT MBH OSTERREICHISCHE FORSCHUNGSFORDERUNGSGESELLSCHAFT MBH Organization address address: SENSENGASSE 1 city: WIEN postcode: 1090 website: www.ffg.at contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	AT (WIEN)	participant	0.00
27	SCHWEIZERISCHER NATIONALFONDS ZUR FORDERUNG DER WISSENSCHAFTLICHEN FORSCHUNG SCHWEIZERISCHER NATIONALFONDS ZUR FORDERUNG DER WISSENSCHAFTLICHEN FORSCHUNG Organization address address: Wildhainweg 3 city: Bern postcode: 3012 website: www.snf.ch contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	CH (Bern)	participant	0.00

Map

Project objective

Rare diseases (RD) are diseases that affect not more than 5 per 10 000 persons (according to the EU definition). 7000 distinct rare diseases exist, affecting between 6% and 8% of the population (about 30 million EU citizens). The lack of specific health policies for rare diseases and the scarcity of the expertise, translate into delayed diagnosis, few medicinal products and difficult access to care. That is why rare diseases are a prime example of a research area that strongly profits from coordination on a European scale. At present only few European countries fund research on rare diseases through specific dedicated programmes. Therefore, the funding of transnational collaborative research is the most effective joint activity to enhance the cooperation between scientists working on rare diseases in Europe and beyond. The E-Rare consortium was built to link responsible funding bodies that combine the scarce resources and fund rare disease research via Joint Transnational Calls (JTCs). The current E-Rare-3 project proposal will extend and strengthen the transnational cooperation by building on the experience and results of the previous E-Rare-1&2 programmes. The consortium comprises 26 institutions from 17 European, Associated and non-European countries. Its international dimension will be directly translated into close collaboration with IRDiRC and other relevant European and international initiatives. IRDiRC guidelines and policies will be implemented in the four JTCs and representatives of the IRDiRC Scientific Committees will be invited to join the Advisory Board of E-Rare-3. Members of the EUCERD group will be involved in identifying rare disease research needs. Patients’ organizations from Europe (represented by EURORDIS) and beyond will be invited as a key partner towards collaborative efforts for research promotion and funding. The collaboration with European Research Infrastructures will be consolidated to enhance efficient and participative research.

Deliverables

List of deliverables.
Information on projects selected for funding including data on each participant and abstracts of the project proposals	Documents, reports	2020-02-26 15:11:07

Take a look to the deliverables list in detail: detailed list of E-Rare-3 deliverables.

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