#	Pagina
attuale pagina	/open-h2020/projects/207205/index.html
-1	/open-h2020/projects/196032/index.html

Opendata, web and dolomites

HarmonicSS SIGNED

HARMONIzation and integrative analysis of regional, national and international Cohorts on primary Sjögren’s Syndrome (pSS) towards improved stratification, treatment and health policy making

Total Cost €

EC-Contrib. €

Partnership

Views

Outcomes and
results

HarmonicSS project word cloud

Explore the words cloud of the HarmonicSS project. It provides you a very rough idea of what is the project "HarmonicSS" about.

expandability sjogren secure big autoimmunity participating designed create services diagnostic standards sharing link gren consideration national international lymphoproliferation governance infection health patient translational harmonicss entrusted interlink policy rheumatology storage vision rheumatoid cloud pss mining enhanced clinicians ethical harmonized multiple medicine few healthcare model alliance data longitudinal privacy primary trials platform cancer cohort semantically syndrome analytics ultrasonography associations integrative network ipr ouml centers clinical possibility makers basic sustainable diseases patients training arthritis levels outcomes tools idea countries pathogenetic segmentation sustainability regional unmet mission sj harmonize companies image cohorts visual structure pharma

Project "HarmonicSS" data sheet

The following table provides information about the project.

Coordinator	ETHNIKO KAI KAPODISTRIAKO PANEPISTIMIO ATHINON Organization address address: 6 CHRISTOU LADA STR city: ATHINA postcode: 10561 website: www.elke.uoa.gr contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.
Coordinator Country	Greece [EL]
Project website	http://harmonicss.eu
Total cost	10˙193˙125 €
EC max contribution	9˙998˙750 € (98%)
Programme	1. H2020-EU.3.1.1. (Understanding health, wellbeing and disease)
Code Call	H2020-SC1-2016-RTD
Funding Scheme	RIA
Starting year	2017
Duration (year-month-day)	from 2017-01-01 to 2020-06-30

Partnership

Take a look of project's partnership.

#	participants	country	role	EC contrib. [€]
1	ETHNIKO KAI KAPODISTRIAKO PANEPISTIMIO ATHINON ETHNIKO KAI KAPODISTRIAKO PANEPISTIMIO ATHINON Organization address address: 6 CHRISTOU LADA STR city: ATHINA postcode: 10561 website: www.elke.uoa.gr contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	EL (ATHINA)	coordinator	761˙247.00
2	PANEPISTIMIO IOANNINON PANEPISTIMIO IOANNINON Organization address address: PANEPISTEMIOYPOLE PANEPISTEMIO IOANNINON city: IOANNINA postcode: 45110 website: www.uoi.gr / www.rc.uoi.gr contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	EL (IOANNINA)	participant	765˙000.00
3	INSTITUTE OF COMMUNICATION AND COMPUTER SYSTEMS INSTITUTE OF COMMUNICATION AND COMPUTER SYSTEMS Organization address address: Patission Str. 42 city: ATHINA postcode: 10682 website: www.iccs.gr contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	EL (ATHINA)	participant	411˙250.00
4	UNIVERSITA DEGLI STUDI DI UDINE UNIVERSITA DEGLI STUDI DI UDINE Organization address address: VIA PALLADIO 8 city: UDINE postcode: 33100 website: www.uniud.it contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	IT (UDINE)	participant	362˙500.00
5	ATOS SPAIN SA ATOS SPAIN SA Organization address address: CALLE DE ALBARRACIN 25 city: MADRID postcode: 28037 website: www.atos.net contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	ES (MADRID)	participant	358˙750.00
6	UNIVERSITE PARIS-SACLAY UNIVERSITE PARIS-SACLAY Organization address address: IMMEUBLE TECHNOLOGIQUE ENTREE B RTE DE L ORME AUX MERISIERS city: SAINT AUBIN postcode: 91190 website: n.a. contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	FR (SAINT AUBIN)	participant	308˙250.00
7	OKLAHOMA MEDICAL RESEARCH FOUNDATION OKLAHOMA MEDICAL RESEARCH FOUNDATION Organization address address: 825 N.E. 13TH STREET city: OKLAHOMA CITY postcode: 73104 website: n.a. contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	US (OKLAHOMA CITY)	participant	290˙633.00
8	FRAUNHOFER GESELLSCHAFT ZUR FOERDERUNG DER ANGEWANDTEN FORSCHUNG E.V. FRAUNHOFER GESELLSCHAFT ZUR FOERDERUNG DER ANGEWANDTEN FORSCHUNG E.V. Organization address address: HANSASTRASSE 27C city: MUNCHEN postcode: 80686 website: www.fraunhofer.de contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	DE (MUNCHEN)	participant	290˙000.00
9	UNIVERSITA DI PISA UNIVERSITA DI PISA Organization address address: LUNGARNO PACINOTTI 43/44 city: PISA postcode: 56126 website: www.unipi.it contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	IT (PISA)	participant	280˙740.00
10	CONSORCI INSTITUT D'INVESTIGACIONS BIOMEDIQUES AUGUST PI I SUNYER CONSORCI INSTITUT D'INVESTIGACIONS BIOMEDIQUES AUGUST PI I SUNYER Organization address address: CALLE ROSSELLO 149 PUERTA BJS city: BARCELONA postcode: 8036 website: http://www.idibaps.org/en_index.html contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	ES (BARCELONA)	participant	280˙122.00
11	QUEEN MARY UNIVERSITY OF LONDON QUEEN MARY UNIVERSITY OF LONDON Organization address address: 327 MILE END ROAD city: LONDON postcode: E1 4NS website: http://www.qmul.ac.uk contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	UK (LONDON)	participant	280˙122.00
12	UNIVERSITA DEGLI STUDI DI ROMA LA SAPIENZA UNIVERSITA DEGLI STUDI DI ROMA LA SAPIENZA Organization address address: Piazzale Aldo Moro 5 city: ROMA postcode: 185 website: www.uniroma1.it contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	IT (ROMA)	participant	279˙503.00
13	UNIVERSITY OF NEWCASTLE UPON TYNE UNIVERSITY OF NEWCASTLE UPON TYNE Organization address address: KINGS GATE city: NEWCASTLE UPON TYNE postcode: NE1 7RU website: http://www.ncl.ac.uk/ contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	UK (NEWCASTLE UPON TYNE)	participant	279˙503.00
14	CHAROKOPEIO PANEPISTIMIO CHAROKOPEIO PANEPISTIMIO Organization address address: ELEFTHERIOU VENIZELOU 70 city: ATHINA postcode: 17671 website: www.hua.gr contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	EL (ATHINA)	participant	279˙132.00
15	ACADEMISCH ZIEKENHUIS GRONINGEN ACADEMISCH ZIEKENHUIS GRONINGEN Organization address address: HANZEPLEIN 1 city: GRONINGEN postcode: 9713 GZ website: www.umcg.nl contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	NL (GRONINGEN)	participant	278˙885.00
16	MEDIZINISCHE HOCHSCHULE HANNOVER MEDIZINISCHE HOCHSCHULE HANNOVER Organization address address: Carl-Neuberg-Strasse 1 city: HANNOVER postcode: 30625 website: www.mh-hannover.de contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	DE (HANNOVER)	participant	277˙648.00
17	UPPSALA UNIVERSITET UPPSALA UNIVERSITET Organization address address: VON KRAEMERS ALLE 4 city: UPPSALA postcode: 751 05 website: www.uu.se contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	SE (UPPSALA)	participant	277˙401.00
18	CHARITE - UNIVERSITAETSMEDIZIN BERLIN CHARITE - UNIVERSITAETSMEDIZIN BERLIN Organization address address: Chariteplatz 1 city: BERLIN postcode: 10117 website: www.charite.de contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	DE (BERLIN)	participant	277˙031.00
19	UNIVERSITAIR MEDISCH CENTRUM UTRECHT UNIVERSITAIR MEDISCH CENTRUM UTRECHT Organization address address: HEIDELBERGLAAN 100 city: UTRECHT postcode: 3584 CX website: www.umcutrecht.nl contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	NL (UTRECHT)	participant	277˙031.00
20	UNIVERSITE DE BRETAGNE OCCIDENTALE UNIVERSITE DE BRETAGNE OCCIDENTALE Organization address address: RUE DES ARCHIVES 3 city: BREST postcode: 29238 website: http://www.univ-brest.fr/ contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	FR (BREST)	participant	276˙411.00
21	UNIVERSITE LIBRE DE BRUXELLES UNIVERSITE LIBRE DE BRUXELLES Organization address address: AVENUE FRANKLIN ROOSEVELT 50 city: BRUXELLES postcode: 1050 website: www.ulb.ac.be contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	BE (BRUXELLES)	participant	276˙411.00
22	UNIVERSITETET I BERGEN UNIVERSITETET I BERGEN Organization address address: MUSEPLASSEN 1 city: BERGEN postcode: 5020 website: www.uib.no contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	NO (BERGEN)	participant	276˙411.00
23	THE UNIVERSITY OF BIRMINGHAM THE UNIVERSITY OF BIRMINGHAM Organization address address: Edgbaston city: BIRMINGHAM postcode: B15 2TT website: www.bham.ac.uk contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	UK (BIRMINGHAM)	participant	275˙793.00
24	UNIVERSITA DEGLI STUDI DI PERUGIA UNIVERSITA DEGLI STUDI DI PERUGIA Organization address address: PIAZZA DELL UNIVERSITA 1 city: PERUGIA postcode: 6123 website: www.unipg.it contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	IT (PERUGIA)	participant	275˙793.00
25	UNIVERSITA DEGLI STUDI DELL'AQUILA UNIVERSITA DEGLI STUDI DELL'AQUILA Organization address address: PIAZZA SANTA MARGHERITA 2 city: L AQUILA postcode: 67100 website: n.a. contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	IT (L AQUILA)	participant	275˙175.00
26	STICHTING NEDERLANDS INSTITUUT VOOR ONDERZOEK VAN DE GEZONDHEIDSZORG STICHTING NEDERLANDS INSTITUUT VOOR ONDERZOEK VAN DE GEZONDHEIDSZORG Organization address address: OTTERSTRAAT 118-124 city: UTRECHT postcode: 3500 BN website: www.nivel.nl contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	NL (UTRECHT)	participant	228˙750.00
27	ISTRAZIVACKO RAZVOJNI CENTAR ZA BIOINZENJERING BIOIRC DOO ISTRAZIVACKO RAZVOJNI CENTAR ZA BIOINZENJERING BIOIRC DOO Organization address address: PRVOSLAVA STOJANOVICA STREET 6 city: KRAGUJEVAC postcode: 34000 website: n.a. contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	RS (KRAGUJEVAC)	participant	206˙250.00
28	ELLINIKO MESOGEIAKO PANEPISTIMIO ELLINIKO MESOGEIAKO PANEPISTIMIO Organization address address: ESTAVROMENOS city: HERAKLION postcode: 71004 website: n.a. contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	EL (HERAKLION)	participant	202˙500.00
29	ETHNIKO KENTRO EREVNAS KAI TECHNOLOGIKIS ANAPTYXIS ETHNIKO KENTRO EREVNAS KAI TECHNOLOGIKIS ANAPTYXIS Organization address address: CHARILAOU THERMI ROAD 6 KM city: THERMI THESSALONIKI postcode: 57001 website: www.certh.gr contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	EL (THERMI THESSALONIKI)	participant	200˙000.00
30	SCUOLA SUPERIORE DI STUDI UNIVERSITARI E DI PERFEZIONAMENTO S ANNA SCUOLA SUPERIORE DI STUDI UNIVERSITARI E DI PERFEZIONAMENTO S ANNA Organization address address: PIAZZA MARTIRI DELLA LIBERTA 33 city: PISA postcode: 56127 website: www.sssup.it contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	IT (PISA)	participant	200˙000.00
31	MARIOS LYMARAKIS KAI SIA EE MARIOS LYMARAKIS KAI SIA EE Organization address address: ETHNIKIS ANTISTASEOS 132 city: GERAKAS ATTIKI postcode: 15344 website: n.a. contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	EL (GERAKAS ATTIKI)	participant	182˙500.00
32	SJOGREN'S SYNDROME FOUNDATION INC. SJOGREN'S SYNDROME FOUNDATION INC. Organization address address: 6707 DEMOCRACY BLVD STE 325 city: BETHESDA MD postcode: 20817 website: n.a. contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	US (BETHESDA MD)	participant	178˙750.00
33	GOTTFRIED WILHELM LEIBNIZ UNIVERSITAET HANNOVER GOTTFRIED WILHELM LEIBNIZ UNIVERSITAET HANNOVER Organization address address: Welfengarten 1 city: HANNOVER postcode: 30167 website: www.uni-hannover.de contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	DE (HANNOVER)	participant	175˙000.00
34	FUNDACIÓN PARA LA INVESTIGACIÓN E INNOVACIÓN BIOMÉDICA DE ATENCIÓN PRIMARIA FUNDACIÓN PARA LA INVESTIGACIÓN E INNOVACIÓN BIOMÉDICA DE ATENCIÓN PRIMARIA Organization address address: C/ SAN MARTIN DE PORRES Nº6 city: MADRID postcode: 28035 website: n.a. contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	ES (MADRID)	participant	93˙750.00
35	ASSISTANCE PUBLIQUE HOPITAUX DE PARIS ASSISTANCE PUBLIQUE HOPITAUX DE PARIS Organization address address: 3 AVENUE VICTORIA city: PARIS postcode: 75000 website: http://www.aphp.fr contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	FR (PARIS)	participant	60˙500.00
36	EUROPEAN LEAGUE AGAINST RHEUMATISM EUROPEAN LEAGUE AGAINST RHEUMATISM Organization address address: Seestrasse 240 city: KILCHBERG postcode: 8802 website: n.a. contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	CH (KILCHBERG)	participant	0.00
37	LUNDS UNIVERSITET LUNDS UNIVERSITET Organization address address: Paradisgatan 5c city: LUND postcode: 22100 website: n.a. contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	SE (LUND)	participant	0.00
38	TECHNOLOGICAL EDUCATIONAL INSTITUTE OF CRETE TECHNOLOGICAL EDUCATIONAL INSTITUTE OF CRETE Organization address address: STAVROMENOS city: IRAKLEIO postcode: 710 04 website: www.teicrete.gr contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	EL (IRAKLEIO)	participant	0.00
39	UNIVERSITE PARIS-SUD UNIVERSITE PARIS-SUD Organization address address: RUE GEORGES CLEMENCEAU 15 city: ORSAY CEDEX postcode: 91405 website: www.u-psud.fr contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	FR (ORSAY CEDEX)	participant	0.00

Map

Project objective

HarmonicSS vision is to create an International Network and Alliance of partners and cohorts, entrusted with the mission of addressing the unmet needs in primary Sjogren Syndrome; working together to create and maintain a platform with open standards and tools, designed to enable secure storage, governance, analytics, access control and controlled sharing of information at multiple levels along with methods to make results of analyses and outcomes comparable across centers and sustainable through Rheumatology associations. The overall idea of the HarmonicSS project is to bring together the largest well characterized regional, national and international longitudinal cohorts of patients with Primary Sjögren’s Syndrome (pSS) including those participating in clinical trials, and after taking into consideration the ethical, legal, privacy and IPR issues for sharing data from different countries, to semantically interlink and harmonize them into an integrative pSS cohort structure on the cloud. Upon this harmonized cohort, services for big data mining, governance and visual analytics will be integrated, to address the identified clinical and health policy pSS unmet needs. In addition, tools for specific diagnostic procedures (e.g. ultrasonography image segmentation), patient selection for clinical trials and training will be also provided. The users of the HarmonicSS platform are researchers (basic/translational), clinicians, health policy makers and pharma companies. pSS is relevant not only due to its clinical impact but also as one of the few “model” diseases to link autoimmunity, cancer development (lymphoproliferation) and the pathogenetic role of infection. Thus, the study of pSS can facilitate research in many areas of medicine; for this reason, the possibility for sustainability and expandability of the platform is enhanced. Moreover, pSS has a significant impact on the healthcare systems, similar to that of rheumatoid arthritis.

Deliverables

List of deliverables.
Report on geographical variations in current clinical practice and scientific evidence	Documents, reports	2020-03-11 13:07:37
Data management plan	Documents, reports	2020-03-11 13:07:36
Ethical, legal, privacy and IPR requirements for data sharing and clinical trials	Documents, reports	2020-03-11 13:07:36
Dissemination plan and activities	Documents, reports	2020-03-11 13:07:36
Requirements of the HarmonicSS platform	Documents, reports	2020-03-11 13:07:36
Project dissemination material	Other	2020-03-11 13:07:36
Project dissemination material 2	Other	2020-03-11 13:07:36
The first version of the core services of the platform	Documents, reports	2020-03-11 13:07:36

Take a look to the deliverables list in detail: detailed list of HarmonicSS deliverables.

Publications

List of publications.
year	authors and title	journal	last update
2019	Vasileios C. Pezoulas, Konstantina D. Kourou, Fanis Kalatzis, Themis P. Exarchos, Aliki Venetsanopoulou, Evi Zampeli, Saviana Gandolfo, Fotini Skopouli, Salvatore De Vita, Athanasios G. Tzioufas, Dimitrios I. Fotiadis Medical data quality assessment: On the development of an automated framework for medical data curation published pages: 270-283, ISSN: 0010-4825, DOI: 10.1016/j.compbiomed.2019.03.001	Computers in Biology and Medicine 107	2020-03-11
2019	Pilar Brito-ZerÃ³n, Nihan Acar-Denizli, Wan-Fai Ng, Ildiko Fanny HorvÃ¡th, Astrid Rasmussen, Raphaele Seror, Xiaomei Li, Chiara Baldini, Jacques-Eric Gottenberg, Debashish Danda, Luca Quartuccio, Roberta Priori, Gabriela Hernandez-Molina, Berkan Armagan, Aike A Kruize, Seung-Ki Kwok, Marika Kvarnstrom, Sonja Praprotnik, Damien Sene, Roberto Gerli, Roser Solans, Maureen Rischmueller, Thomas Mandl, Epidemiological profile and northâ€“south gradient driving baseline systemic involvement of primary SjÃ¶grenâ€™s syndrome published pages: , ISSN: 1462-0324, DOI: 10.1093/rheumatology/kez578	Rheumatology	2020-03-11
2019	Manuel Ramos-Casals, Pilar Brito-ZerÃ³n, Stefano Bombardieri, Hendrika Bootsma, Salvatore De Vita, Thomas DÃ¶rner, Benjamin A Fisher, Jacques-Eric Gottenberg, Gabriela Hernandez-Molina, Agnes Kocher, Belchin Kostov, Aike A. Kruize, Thomas Mandl, Wan-Fai Ng, Soledad Retamozo, RaphaÃ¨le Seror, Yehuda Shoenfeld, Antoni SisÃ³-Almirall, Athanasios G. Tzioufas, Claudio Vitali, Simon Bowman, Xavier Marie EULAR recommendations for the management of SjÃ¶grenâ€™s syndrome with topical and systemic therapies published pages: 3-18, ISSN: 0003-4967, DOI: 10.1136/annrheumdis-2019-216114	Annals of the Rheumatic Diseases 79/1	2020-03-11
2018	Arso M. Vukicevic, Nenad Filipovic, Vera Milic, Alen Zabotti, Alojzija Hocevar, Orazio Di Lucia, Georgios Filippou, Salvatore De Vita, Alejandro F. Frangi, Athanasios Tzioufas Radiomics-based assessment of Primary Sjogren\'s Syndrome from salivary gland ultrasonography images published pages: 1-1, ISSN: 2168-2194, DOI: 10.1109/jbhi.2019.2923773	IEEE Journal of Biomedical and Health Informatics	2020-03-11
2019	Juliana Imgenberg-Kreuz, Jonas Carlsson AlmlÃ¶f, Dag Leonard, Christopher SjÃ¶wall, Ann-Christine SyvÃ¤nen, Lars RÃ¶nnblom, Johanna K. Sandling, Gunnel Nordmark Shared and Unique Patterns of DNA Methylation in Systemic Lupus Erythematosus and Primary SjÃ¶gren\'s Syndrome published pages: , ISSN: 1664-3224, DOI: 10.3389/fimmu.2019.01686	Frontiers in Immunology 10	2020-03-11
2019	Vasileios Pezoulas, Themis Exarchos, Aliki Venetsanopoulou, Evangelia Zampeli, Saviana Gandolfo, Salvatore De Vita, Foteini N. Skopouli, Athanasios Tzioufas, Dimitrios Fotiadis AB0166â€…ENHANCING THE QUALITY OF CLINICAL DATA THROUGH DATA CURATION IN PRIMARY SJÃ¶GRENâ€™S SYNDROME published pages: 1541.2-1542, ISSN: , DOI: 10.1136/annrheumdis-2019-eular.4139	Abstracts Accepted for Publication	2020-03-11
2020	Konstantina D. Kourou, Earalampos M. Moutsopoulos, Clio Mavragani, Dimitrios I. Fotiadis, Vasileios C. Pezoulas, Eleni I. Georga, Themis Exarchos, Costas Papaloukas, Michalis Voulgarelis, Andreas Goules, Andrianos Nezos, Athanasios G. Tzioufas Predicting Lymphoma Development by Exploiting Genetic Variants and Clinical Findings in a Machine Learning-Based Methodology With Ensemble Classifiers in a Cohort of SjÃ¶gren\'s Syndrome Patients published pages: 49-56, ISSN: 2644-1276, DOI: 10.1109/ojemb.2020.2965191	IEEE Open Journal of Engineering in Medicine and Biology 1	2020-03-11
2019	Valerie Devauchelle-Pensec, Alen Zabotti, Guillermo Carvajal-Alegria, Nenad Filipovic, Sandrine Jousse-Joulin, Salvatore De Vita Salivary gland ultrasonography in primary SjÃ¶grenâ€™s syndrome: opportunities and challenges published pages: , ISSN: 1462-0324, DOI: 10.1093/rheumatology/kez079	Rheumatology	2020-03-11
2019	Juliana Imgenberg-Kreuz, Astrid Rasmussen, Kathy Sivils, Gunnel Nordmark Genetics and epigenetics in primary SjÃ¶grenâ€™s syndrome published pages: , ISSN: 1462-0324, DOI: 10.1093/rheumatology/key330	Rheumatology	2020-03-11
2018	Juliana Imgenberg-Kreuz, Johanna K. Sandling, Gunnel Nordmark Epigenetic alterations in primary SjÃ¶gren\'s syndrome â€“ an overview published pages: , ISSN: 1521-6616, DOI: 10.1016/j.clim.2018.04.004	Clinical Immunology	2020-03-11
2018	E.K. Kapsogeorgou, A. Papageorgiou, A.D. Protogerou, M. Voulgarelis, A.G. Tzioufas Low miR200b-5p Levels in Minor Salivary Glands: A Novel Independent Predictor of Lymphoma Development in Patients with SjÃ¶grenâ€™s Syndrome (SS) published pages: , ISSN: , DOI:		2020-03-11
2018	Annie Visser, Marieke E. Doorenspleet, Niek de Vries, Fred K. L. Spijkervet, Arjan Vissink, Richard J. Bende, Hendrika Bootsma, Frans G. M. Kroese, Nicolaas A. Bos Acquisition of N-Glycosylation Sites in Immunoglobulin Heavy Chain Genes During Local Expansion in Parotid Salivary Glands of Primary SjÃ¶gren Patients published pages: , ISSN: 1664-3224, DOI: 10.3389/fimmu.2018.00491	Frontiers in Immunology 9	2020-03-11
2018	Ã˜yvind Bruserud, Huma Siddiqui, Mihaela Cuida Marthinussen, Tsute Chen, Roland Jonsson, Bergithe Eikeland Oftedal, Ingar Olsen, Eystein Sverre Husebye, Anette BÃ¸e Wolff Oral microbiota in autoimmune polyendocrine syndrome type 1 published pages: 1442986, ISSN: 2000-2297, DOI: 10.1080/20002297.2018.1442986	Journal of Oral Microbiology 10/1	2020-03-11
2018	Fotini N. Skopouli, Stergios Katsiougiannis How stress contributes to autoimmunity-lessons from SjÃ¶gren\'s syndrome published pages: 5-14, ISSN: 0014-5793, DOI: 10.1002/1873-3468.12933	FEBS Letters 592/1	2020-03-11
2018	Elena Pontarini, Davide Lucchesi, Michele Bombardieri Current views on the pathogenesis of SjÃ¶grenÊ¼s syndrome published pages: 215-221, ISSN: 1040-8711, DOI: 10.1097/BOR.0000000000000473	Current Opinion in Rheumatology 30/2	2020-03-11
2017	Jacques-Olivier Pers When European research is interested in SjÃ¶gren\'s syndrome: an update on collaborative projects in progress published pages: , ISSN: , DOI:		2020-03-11
2017	Odilia B. J. Corneth, Gwenny M. P. Verstappen, Sandra M. J. Paulissen, Marjolein J. W. de Bruijn, Jasper Rip, Melanie Lukkes, Jan Piet van Hamburg, Erik Lubberts, Hendrika Bootsma, Frans G. M. Kroese, Rudi W. Hendriks Enhanced Bruton\'s Tyrosine Kinase Activity in Peripheral Blood B Lymphocytes From Patients With Autoimmune Disease published pages: 1313-1324, ISSN: 2326-5191, DOI: 10.1002/art.40059	Arthritis & Rheumatology 69/6	2020-03-11
2018	Arso Vukicevic, Vera Milic, Bojana Andjelkovic-Cirkovic, Alen Zabotti, Salvatore de Vita, Alejandro F. Frangi, Nenad Filipovic Radiomics-based assessment of Primary SjÃ¶grenâ€™s Syndrome from salivary gland ultrasonography published pages: , ISSN: , DOI:		2020-03-11
2017	R. Davies, D. Hammenfors, B. Bergum, K. Jakobsen, M. Solheim, P. Vogelsang, J. G. Brun, Y. Bryceson, R. Jonsson, S. Appel Patients with Primary SjÃ¶gren\'s Syndrome Have Alterations in Absolute Quantities of Specific Peripheral Leucocyte Populations published pages: 491-502, ISSN: 0300-9475, DOI: 10.1111/sji.12622	Scandinavian Journal of Immunology 86/6	2020-03-11
2018	Xiaoyan Wang, Abeer Shaalan, Silvia Liefers, Julie Coudenys, Dirk Elewaut, Gordon B. Proctor, Hendrika Bootsma, Frans G. M. Kroese, Sarah Pringle Dysregulation of NF-kB in glandular epithelial cells results in SjÃ¶grenâ€™s-like features published pages: e0200212, ISSN: 1932-6203, DOI: 10.1371/journal.pone.0200212	PLOS ONE 13/8	2020-03-11
2017	Ana-Luisa Stefanski, Christian Tomiak, Uwe Pleyer, Thomas Dietrich, Gerd RÃ¼diger Burmester, Thomas DÃ¶rner The Diagnosis and Treatment of SjÃ¶grenâ€™s Syndrome published pages: , ISSN: 1866-0452, DOI: 10.3238/arztebl.2017.0354	Deutsches Aerzteblatt Online	2020-03-11
2017	Susanna Brauner, Lasse Folkersen, Marika KvarnstrÃ¶m, Sabrina Meisgen, Sven Petersen, Michaela FranzÃ©n-Malmros, Johannes Mofors, Karl A Brokstad, Lars Klareskog, Roland Jonsson, Lisa S Westerberg, Christina Trollmo, Vivianne MalmstrÃ¶m, Aurelie Ambrosi, Vijay K Kuchroo, Gunnel Nordmark, Marie Wahren-Herlenius H1N1 vaccination in SjÃ¶grenâ€™s syndrome triggers polyclonal B cell activation and promotes autoantibody production published pages: 1755-1763, ISSN: 0003-4967, DOI: 10.1136/annrheumdis-2016-210509	Annals of the Rheumatic Diseases 76/10	2020-03-11
2017	Gwenny M. Verstappen, Jolien F. van Nimwegen, Arjan Vissink, Frans G.M. Kroese, Hendrika Bootsma The value of rituximab treatment in primary SjÃ¶gren\'s syndrome published pages: 62-71, ISSN: 1521-6616, DOI: 10.1016/j.clim.2017.05.002	Clinical Immunology 182	2020-03-11
2017	Jorge I. RamÃrez SepÃºlveda, Marika KvarnstrÃ¶m, Per Eriksson, Thomas Mandl, Katrine BrÃ¦kke Norheim, Svein Joar Johnsen, Daniel Hammenfors, Malin V. Jonsson, Kathrine Skarstein, Johan G. Brun, Lars RÃ¶nnblom, Helena Forsblad-dâ€™Elia, Sara Magnusson Bucher, Eva Baecklund, Elke Theander, Roald Omdal, Roland Jonsson, Gunnel Nordmark, Marie Wahren-Herlenius Long-term follow-up in primary SjÃ¶grenâ€™s syndrome reveals differences in clinical presentation between female and male patients published pages: , ISSN: 2042-6410, DOI: 10.1186/s13293-017-0146-6	Biology of Sex Differences 8/1	2020-03-11
2017	Sandrine Jousse-Joulin, Emmanuel Nowak, Divi Cornec, Jackie Brown, Andrew Carr, Marina Carotti, Benjamin Fisher, Joel Fradin, Alojzija Hocevar, Malin V Jonsson, Nicoletta Luciano, Vera Milic, John Rout, Elke Theander, Aaltje Stel, Hendrika Bootsma, Arjan Vissink, Chiara Baldini, Alan Baer, Wan Fai Ng, Simon Bowman, Zarrin Alavi, Alain Saraux, ValÃ©rie Devauchelle-Pensec Salivary gland ultrasound abnormalities in primary SjÃ¶grenâ€™s syndrome: consensual US-SG core items definition and reliability published pages: e000364, ISSN: 2056-5933, DOI: 10.1136/rmdopen-2016-000364	RMD Open 3/1	2020-03-11
2018	E.K. Kapsogeorgou, A. Papageorgiou, A.D. Protogerou, M. Voulgarelis, A.G. Tzioufas Low miR200b-5p levels in minor salivary glands associate with lymphoma development in patients with SjÃ¶grenâ€™s syndrome (SS) published pages: , ISSN: , DOI:		2020-03-11
2017	Arso Vukicevic, Alen Zabotti, Salvatore de Vita, Nenad Filipovic Assessment of machine learning algorithms for the purpose of Primary SjÃ¶grenâ€™s syndrome grade classification from segmented ultrasonography images published pages: , ISSN: , DOI:		2020-03-11
2017	Tove Ragna Reksten, Roland Jonsson SjÃ¶gren syndrome genetics vary according to ancestry published pages: 202-203, ISSN: 1759-4790, DOI: 10.1038/nrrheum.2017.36	Nature Reviews Rheumatology 13/4	2020-03-11
2018	F.G.M. Kroese, E.A. Haacke, M. Bombardieri The role of salivary gland histopathology in primary SjÃ¶grenâ€™s syndrome: promises and pitfalls published pages: , ISSN: 1593-098X, DOI:	Clinical and Experimental Rheumatology	2020-03-11
2017	Chiara Seghieri, Chiara Baldini, Luca Quartuccio, Francesco Ferro, Saviana Gandolfo, Salvatore De Vita and Stefano Bombardieri Development and Validation of a Questionnaire to Assess Healthcare Utilization and Access in Cohorts of Patients with Primary SjoÌˆgrenâ€™s Syndrome published pages: , ISSN: , DOI:		2020-03-11
2018	F. Barone Sjogrenâ€™s syndrome: from pathophysiology to novel clinical trials published pages: , ISSN: , DOI:		2020-03-11
2017	M. Karlsen, K. Jakobsen, R. Jonsson, D. Hammenfors, T. Hansen, S. Appel Expression of Toll-Like Receptors in Peripheral Blood Mononuclear Cells of Patients with Primary SjÃ¶gren\'s Syndrome published pages: 220-226, ISSN: 0300-9475, DOI: 10.1111/sji.12520	Scandinavian Journal of Immunology 85/3	2020-03-11
2018	Richard Davies, Daniel Hammenfors, Brith Bergum, Petra Vogelsang, Sonia Gavasso, Johan G. Brun, Roland Jonsson, Silke Appel Aberrant cell signalling in PBMCs upon IFN-Î± stimulation in primary SjÃ¶gren\'s syndrome patients associates with type I interferon signature published pages: 1217-1227, ISSN: 0014-2980, DOI: 10.1002/eji.201747213	European Journal of Immunology 48/7	2020-03-11
2018	Konstantina Kourou, Vasileios C. Pezoulas, Eleni I. Georga, Themis Exarchos, Panayiotis Tsanakas, Manolis Tsiknakis, Theodora Varvarigou, Salvatore De Vita, Athanasios Tzioufas, Dimitrios I. I. Fotiadis Cohort Harmonization and Integrative Analysis from a Biomedical Engineering Perspective published pages: 1-1, ISSN: 1937-3333, DOI: 10.1109/RBME.2018.2855055	IEEE Reviews in Biomedical Engineering	2020-03-11
2017	Benjamin A Fisher, Roland Jonsson, Troy Daniels, Michele Bombardieri, Rachel M Brown, Peter Morgan, Stefano Bombardieri, Wan-Fai Ng, Athanasios G Tzioufas, Claudio Vitali, Pepe Shirlaw, Erlin Haacke, Sebastian Costa, Hendrika Bootsma, Valerie Devauchelle-Pensec, Timothy R Radstake, Xavier Mariette, Andrea Richards, Rebecca Stack, Simon J Bowman, Francesca Barone Standardisation of labial salivary gland histopathology in clinical trials in primary SjÃ¶gren\'s syndrome published pages: 1161-1168, ISSN: 0003-4967, DOI: 10.1136/annrheumdis-2016-210448	Annals of the Rheumatic Diseases 76/7	2020-03-11
2018	Efstathia K Kapsogeorgou, Aristea Papageorgiou, Athanase D Protogerou, Michael Voulgarelis, Athanasios G Tzioufas Low miR200b-5p levels in minor salivary glands: a novel molecular marker predicting lymphoma development in patients with SjÃ¶grenâ€™s syndrome published pages: annrheumdis-2017, ISSN: 0003-4967, DOI: 10.1136/annrheumdis-2017-212639	Annals of the Rheumatic Diseases	2020-03-11
2018	Esther Mossel, Suzanne Arends, Jolien F van Nimwegen, Konstantina Delli, Alja J Stel, Frans G M Kroese, Fred K L Spijkervet, Arjan Vissink, Hendrika Bootsma Scoring hypoechogenic areas in one parotid and one submandibular gland increases feasibility of ultrasound in primary SjÃ¶grenâ€™s syndrome published pages: 556-562, ISSN: 0003-4967, DOI: 10.1136/annrheumdis-2017-211992	Annals of the Rheumatic Diseases 77/4	2020-03-11
2016	Caroline H Shiboski, Stephen C Shiboski, RaphaÃ¨le Seror, Lindsey A Criswell, Marc Labetoulle, Thomas M Lietman, Astrid Rasmussen, Hal Scofield, Claudio Vitali, Simon J Bowman, Xavier Mariette 2016 American College of Rheumatology/European League Against Rheumatism classification criteria for primary SjÃ¶gren\'s syndrome published pages: 9-16, ISSN: 0003-4967, DOI: 10.1136/annrheumdis-2016-210571	Annals of the Rheumatic Diseases 76/1	2020-03-11
2017	Juan A LÃ³pez-RodrÃguez, MD, PhD Predictive Value of Clinical records, Characterization and Health Policy Evaluation in Primary Healthcare. published pages: , ISSN: , DOI:		2020-03-11
2017	Rohan Sharma, Valerie M. Harris, Joshua Cavett, Biji T. Kurien, Ke Liu, Kristi A. Koelsch, Anum Fayaaz, Kaustubh S. Chaudhari, Lida Radfar, David Lewis, Donald U. Stone, C. Erick Kaufman, Shibo Li, Barbara Segal, Daniel J. Wallace, Michael H. Weisman, Swamy Venuturupalli, Jennifer A. Kelly, Bernardo Pons-Estel, Roland Jonsson, Xianglan Lu, Jacques-Eric Gottenberg, Juan-Manuel Anaya, Deborah S. Cunninghame-Graham, Andrew J. W. Huang, Michael T. Brennan, Pamela Hughes, Ilias Alevizos, Corinne Miceli-Richard, Edward C. Keystone, Vivian P. Bykerk, Gideon Hirschfield, Gunnel Nordmark, Sara Magnusson Bucher, Per Eriksson, Roald Omdal, Nelson L. Rhodus, Maureen Rischmueller, Michael Rohrer, Marie Wahren-Herlenius, Torsten Witte, Marta AlarcÃ³n-Riquelme, Xavier Mariette, Christopher J. Lessard, John B. Harley, Wan-Fai Ng, Astrid Rasmussen, Kathy L. Sivils, R. Hal Scofield Brief Report: Rare X Chromosome Abnormalities in Systemic Lupus Erythematosus and SjÃ¶gren\'s Syndrome published pages: 2187-2192, ISSN: 2326-5191, DOI: 10.1002/art.40207	Arthritis & Rheumatology 69/11	2020-03-11
2017	Caroline H. Shiboski, Stephen C. Shiboski, RaphaÃ¨le Seror, Lindsey A. Criswell, Marc Labetoulle, Thomas M. Lietman, Astrid Rasmussen, Hal Scofield, Claudio Vitali, Simon J. Bowman, Xavier Mariette 2016 American College of Rheumatology/European League Against Rheumatism Classification Criteria for Primary SjÃ¶gren\'s Syndrome: A Consensus and Data-Driven Methodology Involving Three International Patient Cohorts published pages: 35-45, ISSN: 2326-5191, DOI: 10.1002/art.39859	Arthritis & Rheumatology 69/1	2020-03-11
2018	J. Imgenberg-Kreuz, J. K. Sandling, A. BjÃ¶rk, J. Nordlund, M. KvarnstrÃ¶m, M.-L. Eloranta, L. RÃ¶nnblom, M. Wahren-Herlenius, A.-C. SyvÃ¤nen, G. Nordmark Transcription profiling of peripheral B cells in antibody-positive primary SjÃ¶gren\'s syndrome reveals upregulated expression of CX3CR1 and a type I and type II interferon signature published pages: e12662, ISSN: 0300-9475, DOI: 10.1111/sji.12662	Scandinavian Journal of Immunology 87/5	2020-03-11
2017	Juan A LÃ³pez-RodrÃguez, MD, PhD Rare diseases in Primary Care published pages: , ISSN: , DOI:		2020-03-11
2017	Erlin A. Haacke, Hendrika Bootsma, Fred K.L. Spijkervet, Annie Visser, Arjan Vissink, Philip M. Kluin, Frans G.M. Kroese FcRL4 + B-cells in salivary glands of primary SjÃ¶gren\'s syndrome patients published pages: 90-98, ISSN: 0896-8411, DOI: 10.1016/j.jaut.2017.03.012	Journal of Autoimmunity 81	2020-03-11
2018	Gwenny M. Verstappen, Odilia B.J. Corneth, Hendrika Bootsma, Frans G.M. Kroese Th17Â cells in primary SjÃ¶gren\'s syndrome: Pathogenicity and plasticity published pages: 16-25, ISSN: 0896-8411, DOI: 10.1016/j.jaut.2017.11.003	Journal of Autoimmunity 87	2020-03-11
2017	He Li, Tove Ragna Reksten, John A. Ice, Jennifer A. Kelly, Indra Adrianto, Astrid Rasmussen, Shaofeng Wang, Bo He, Kiely M. Grundahl, Stuart B. Glenn, Corinne Miceli-Richard, Simon Bowman, Sue Lester, Per Eriksson, Maija-Leena Eloranta, Johan G. Brun, Lasse G. GÃ¸ransson, Erna Harboe, Joel M. Guthridge, Kenneth M. Kaufman, Marika KvarnstrÃ¶m, Deborah S. Cunninghame Graham, Ketan Patel, Adam J. Adler, A. Darise Farris, Michael T. Brennan, James Chodosh, Rajaram Gopalakrishnan, Michael H. Weisman, Swamy Venuturupalli, Daniel J. Wallace, Kimberly S. Hefner, Glen D. Houston, Andrew J. W. Huang, Pamela J. Hughes, David M. Lewis, Lida Radfar, Evan S. Vista, Contessa E. Edgar, Michael D. Rohrer, Donald U. Stone, Timothy J. Vyse, John B. Harley, Patrick M. Gaffney, Judith A. James, Sean Turner, Ilias Alevizos, Juan-Manuel Anaya, Nelson L. Rhodus, Barbara M. Segal, Courtney G. Montgomery, R. Hal Scofield, Susan Kovats, Xavier Mariette, Lars RÃ¶nnblom, Torsten Witte, Maureen Rischmueller, Marie Wahren-Herlenius, Roald Omdal, Roland Jonsson, Wan-Fai Ng, Gunnel Nordmark, Christopher J. Lessard, Kathy L. Sivils Identification of a SjÃ¶gren\'s syndrome susceptibility locus at OAS1 that influences isoform switching, protein expression, and responsiveness to type I interferons published pages: e1006820, ISSN: 1553-7404, DOI: 10.1371/journal.pgen.1006820	PLOS Genetics 13/6	2020-03-11
2018	F. Barone Salivary Gland Histopathology: International Consensus on Biopsy Interpretation published pages: , ISSN: , DOI:		2020-03-11
2017	S Gandolfo, C Fabro, M Bulfoni, S Russi, P Masolini, L Quartuccio, D Cesselli, S De Vita AB0156â€…Thymic stromal lymphopoietin (TSLP) in primary sjÃ–gren\'s syndrome and related lymphoma: the possible contribution of a novel growth factor published pages: 1101.2-1101, ISSN: , DOI: 10.1136/annrheumdis-2017-eular.6450	Abstracts Accepted for Publication	2020-03-11

Are you the coordinator (or a participant) of this project? Plaese send me more information about the "HARMONICSS" project.

For instance: the website url (it has not provided by EU-opendata yet), the logo, a more detailed description of the project (in plain text as a rtf file or a word file), some pictures (as picture files, not embedded into any word file), twitter account, linkedin page, etc.

Send me an email (fabio@fabiodisconzi.com) and I put them in your project's page as son as possible.

Thanks. And then put a link of this page into your project's website.

The information about "HARMONICSS" are provided by the European Opendata Portal: CORDIS opendata.