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PanCareFollowUp SIGNED

PanCareFollowUp: Novel, patient-centred survivorship care to improve care quality, effectiveness, cost-effectiveness and accessibility for survivors and caregivers

Total Cost €

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EC-Contrib. €

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Partnership

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Project "PanCareFollowUp" data sheet

The following table provides information about the project.

Coordinator
PRINSES MAXIMA CENTRUM VOOR KINDERONCOLOGIE BV 

Organization address
address: HEIDELBERGLAAN 25
city: UTRECHT
postcode: 3584CS
website: www.prinsesmaximacentrum.nl

contact info
title: n.a.
name: n.a.
surname: n.a.
function: n.a.
email: n.a.
telephone: n.a.
fax: n.a.

 Coordinator Country Netherlands [NL]
 Total cost 3˙999˙872 €
 EC max contribution 3˙999˙872 € (100%)
 Programme 1. H2020-EU.3.1.3. (Treating and managing disease)
 Code Call H2020-SC1-2018-Single-Stage-RTD
 Funding Scheme RIA
 Starting year 2019
 Duration (year-month-day) from 2019-01-01   to  2023-12-31

 Partnership

Take a look of project's partnership.

# participants  country  role  EC contrib. [€] 
1    PRINSES MAXIMA CENTRUM VOOR KINDERONCOLOGIE BV NL (UTRECHT) coordinator 711˙875.00
2    LUNDS UNIVERSITET SE (LUND) participant 508˙998.00
3    ISTITUTO GIANNINA GASLINI IT (GENOVA) participant 451˙000.00
4    KATHOLIEKE UNIVERSITEIT LEUVEN BE (LEUVEN) participant 400˙000.00
5    FAKULTNI NEMOCNICE U SV. ANNY V BRNE CZ (Brno) participant 363˙000.00
6    KRAEFTENS BEKAEMPELSE DK (KOEBENHAVN) participant 335˙000.00
7    STICHTING KATHOLIEKE UNIVERSITEIT NL (NIJMEGEN) participant 310˙000.00
8    UNIVERSITAT LUZERN CH (LUZERN) participant 220˙000.00
9    PINTAIL LTD IE (Blackrock) participant 205˙000.00
10    STICHTING NEDERLANDS INSTITUUT VOOR ONDERZOEK VAN DE GEZONDHEIDSZORG NL (UTRECHT) participant 120˙000.00
11    SIOP EUROPE ASBL BE (BRUXELLES) participant 117˙500.00
12    OSTERREICHISCHE KINDER-KREBS-HILFE-VERBAND DER OSTERREICHISCHEN KINDER-KREBS-HILFE-ORGANISATIONEN VEREIN AT (WIEN) participant 110˙000.00
13    UNIVERSITY OF NEWCASTLE UPON TYNE UK (NEWCASTLE UPON TYNE) participant 84˙998.00
14    PANCARE NL (BUSSUM) participant 62˙500.00

Map

 Project objective

The 5-year survival for children with cancer increased from 30% in the 1970s to more than 80% at present. There are up to 300,000 childhood cancer survivors in Europe and this number is increasing. Years after treatment, childhood cancer survivors are at high risk for developing health and psychosocial late effects, resulting in excess morbidity and mortality compared the general population. The impact on the quality of life (QoL) of survivors and their families, as well as the societal and economic burdens, are significant. However, these impacts can be reduced by long-term survivorship care to detect treatable disease at an early phase and start timely interventions to preserve health, improve QoL, as well as coordinate specialised care and empower survivors.

Implementing follow-up care, especially for young adult and adult survivors of childhood cancer, has proven challenging across Europe. These survivors have left paediatric care and most of them have no opportunity to visit experts in survivorship care. To improve survivorship care for these survivors across Europe, PanCareFollowUp will conduct a prospective cohort study to assess effectiveness, value, cost effectiveness and feasibility of the PanCareFollowUp Care intervention, a person-centred approach to survivor follow-up care based on international clinical guidelines for surveillance of late effects. PanCareFollowUp also includes the development and assessment of a personalised, guideline-based eHealth lifestyle intervention.

Ensuring that the PanCareFollowUp interventions are used in the real world is paramount to achieving enduring improvements to survivorship care. Hence, the project includes the development of materials to support sustainable maintenance and replication of the PanCareFollowUp interventions. The PanCare network will become the guardian of the interventions after the project, ensuring that the intervention materials are openly available, sustainably maintained and widely shared.

Are you the coordinator (or a participant) of this project? Plaese send me more information about the "PANCAREFOLLOWUP" project.

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Send me an  email (fabio@fabiodisconzi.com) and I put them in your project's page as son as possible.

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The information about "PANCAREFOLLOWUP" are provided by the European Opendata Portal: CORDIS opendata.

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