INSUP-C
Patient-centered palliative care pathways in advanced cancer and chronic disease
| Coordinatore | STICHTING KATHOLIEKE UNIVERSITEIT
Organization address
address: GEERT GROOTEPLEIN NOORD 9 contact info |
| Nazionalità Coordinatore | Netherlands [NL] |
| Totale costo | 3˙615˙172 € |
| EC contributo | 2˙911˙593 € |
| Programma | FP7-HEALTH
Specific Programme "Cooperation": Health |
| Code Call | FP7-HEALTH-2012-INNOVATION-1 |
| Funding Scheme | CP-FP |
| Anno di inizio | 2012 |
| Periodo (anno-mese-giorno) | 2012-11-01 - 2016-10-31 |
Partecipanti
| # | ||||
|---|---|---|---|---|
| 1 |
STICHTING KATHOLIEKE UNIVERSITEIT
Organization address
address: GEERT GROOTEPLEIN NOORD 9 contact info |
NL (NIJMEGEN) | coordinator | 1˙038˙293.00 |
| 2 |
UNIVERSITAETSKLINIKUM BONN
Organization address
address: Sigmund-Freud-Strasse 25 contact info |
DE (BONN) | participant | 587˙988.00 |
| 3 |
LANCASTER UNIVERSITY
Organization address
address: BAILRIGG contact info |
UK (LANCASTER) | participant | 565˙605.00 |
| 4 |
PECSI TUDOMANYEGYETEM - UNIVERSITY OF PECS
Organization address
address: VASVARI PAL UTCA 4 contact info |
HU (PECS) | participant | 210˙514.00 |
| 5 |
KATHOLIEKE UNIVERSITEIT LEUVEN
Organization address
address: Oude Markt 13 contact info |
BE (LEUVEN) | participant | 188˙748.00 |
| 6 |
UNIVERSIDAD DE NAVARRA
Organization address
address: CAMPUS UNIVERSITARIO EDIFICIO CENTRAL contact info |
ES (PAMPLONA) | participant | 85˙763.00 |
| 7 |
ERASMUS UNIVERSITEIT ROTTERDAM
Organization address
address: BURGEMEESTER OUDLAAN 50 contact info |
NL (ROTTERDAM) | participant | 76˙342.50 |
| 8 |
WORLD HEALTH ORGANIZATION.
Organization address
address: Avenue Appia 20 contact info |
CH (GENEVE) | participant | 75˙360.00 |
| 9 |
THE UNIVERSITY OF SHEFFIELD
Organization address
address: FIRTH COURT WESTERN BANK contact info |
UK (SHEFFIELD) | participant | 45˙000.00 |
| 10 |
ASSOCIAZIONE EUROPEA PER LE CURE PALLIATIVE
Organization address
address: Via Venezian 1 contact info |
IT (MILANO) | participant | 20˙280.00 |
| 11 |
ICAHN SCHOOL OF MEDICINE AT MOUNT SINAI
Organization address
address: ONE GUSTAVE L LEVY PLACE BOX 1075 contact info |
US (NEW YORK) | participant | 17˙700.00 |
Mappa
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Obiettivo del progetto (Objective)
'Integrated delivery systems of care, e.g. networks of health organizations and professionals who work together to coordinate services to meet their patients’ needs, are an important way of linking fragmented services and maximizing system efficiency and seamlessness of patient transition. Research increasingly shows that patients with advanced cancer and advanced chronic disease are treated well by integrated palliative care pathways, with comparable quality of care at lower costs. Palliative care involves the multidisciplinary care for patients in the last phase of life-threatening disease and is expected to largely grow due to the ageing of the European population. However, palliative care in Europe is still mostly organized across institutional lines: hospital, home care, hospice. This project aims at the identification of best practices in integrated palliative care with regard to quality of life and quality of care. Mixed methods will be used to identify models for integrated palliative care in Europe and to assess patient/caregiver experiences and perceptions within these pathways at the one hand and organizational, managerial, financial and regulatory aspects of these integrated pathways at the other hand. The project will evaluate existing initiatives for patients with cancer, COPD and CHF, and will deliver recommendations on (requirements for) best practices in integrated palliative care. This will also include recommendations on (changes in) skill mix of health professionals. Results will be disseminated via conferences, articles, and an interactive website including an e-learning module. This project will contribute vastly to the improvement of the (organization of) care for patients with advanced cancer and chronic disease and can be extrapolated to other patients with complex care needs.'
Introduzione (Teaser)
Palliative care can help improve the quality of life for people with serious illnesses. An EU-funded project is developing a model of integrated palliative care.
Descrizione progetto (Article)
The project 'Patient-centred palliative care pathways in advanced cancer and chronic disease' (http://www.insup-c.eu/ (INSUP-C)) is focused on individuals with advanced cancer, advanced stages of chronic obstructive pulmonary disease or congestive heart failure. The goal is to provide these patients and their caregivers access to appropriate palliative care at the desired place of treatment, together with improved communication, cooperation and coordination within integrated care settings.
To achieve this goal, the project will investigate and compare initiatives in integrated palliative care across Europe to identify the requirements for best/good and promising practices. Research involves a literature review to identify existing integrated palliative care initiatives for patients, followed by a study of those integrated initiatives.
To date, the team has found only a few models of integrated palliative care. The ones that do exist, however, stress the benefits of a team approach introduced to patients earlier in their disease trajectory.
Similarly, the level of integration of palliative care is skewed. Most highlight the timing of care and stress a holistic approach, but advance care planning, recommendations for grief and bereavement, and assessments of patients' goals are limited. Finally, the team has developed a draft of a taxonomy for integrated palliative care.
The project has built a website to store documents, report on coming events and record activities. In time, the website will also host an e-learning platform and benchmarking tools.
This work has the potential to strengthen palliative care across Europe by facilitating learning on the job with the help of respected experts. The availability of best practices will help guide health policy decision making.
Both patients and their caregivers will benefit from more effective integrated palliative care strategies. More patients will be able to stay in their preferred place throughout their illness, and their caregivers will have more support. Ultimately, the research will add to scientific evidence on the optimal organisation of integrated palliative care in Europe.