INSUP-C

Patient-centered palliative care pathways in advanced cancer and chronic disease

Coordinatore	STICHTING KATHOLIEKE UNIVERSITEIT    more  Organization address address: GEERT GROOTEPLEIN NOORD 9 city: NIJMEGEN postcode: 6525 EZ contact info Titolo: Mr. Nome: Maarten Cognome: Van Langen Email: send email Telefono: 31243619791
Nazionalità Coordinatore	Netherlands [NL]
Totale costo	3˙615˙172 €
EC contributo	2˙911˙593 €
Programma	FP7-HEALTH Specific Programme "Cooperation": Health
Code Call	FP7-HEALTH-2012-INNOVATION-1
Funding Scheme	CP-FP
Anno di inizio	2012
Periodo (anno-mese-giorno)	2012-11-01   -   2016-10-31

 Partecipanti

#	participant	country	role	EC contrib. [€]
1	STICHTING KATHOLIEKE UNIVERSITEIT  Organization address address: GEERT GROOTEPLEIN NOORD 9 city: NIJMEGEN postcode: 6525 EZ contact info Titolo: Mr. Nome: Maarten Cognome: Van Langen Email: send email Telefono: 31243619791	NL (NIJMEGEN)	coordinator	1˙038˙293.00
2	UNIVERSITAETSKLINIKUM BONN  Organization address address: Sigmund-Freud-Strasse 25 city: BONN postcode: 53105 contact info Nome: Beate Cognome: Becker Email: send email Telefono: +49 22828719454 Fax: +49 22828714635	DE (BONN)	participant	587˙988.00
3	LANCASTER UNIVERSITY  Organization address address: BAILRIGG city: LANCASTER postcode: LA1 4YW contact info Titolo: Mrs. Nome: Mary Cognome: English Email: send email Telefono: +44 1524 592301 Fax: +44 1524 593229	UK (LANCASTER)	participant	565˙605.00
4	PECSI TUDOMANYEGYETEM - UNIVERSITY OF PECS  Organization address address: VASVARI PAL UTCA 4 city: PECS postcode: 7622 contact info Titolo: Dr. Nome: Jozsefne Cognome: Krutki Email: send email Telefono: 3672501510 Fax: 3672501506	HU (PECS)	participant	210˙514.00
5	KATHOLIEKE UNIVERSITEIT LEUVEN  Organization address address: Oude Markt 13 city: LEUVEN postcode: 3000 contact info Titolo: Dr. Nome: Elke Cognome: Lammertyn Email: send email Telefono: +32 16 32 06 21	BE (LEUVEN)	participant	188˙748.00
6	UNIVERSIDAD DE NAVARRA  Organization address address: CAMPUS UNIVERSITARIO EDIFICIO CENTRAL city: PAMPLONA postcode: 31080 contact info Titolo: Mr. Nome: Fco. Javier Cognome: Irigoyen Barrio Email: send email Telefono: 34948176748	ES (PAMPLONA)	participant	85˙763.00
7	ERASMUS UNIVERSITEIT ROTTERDAM  Organization address address: BURGEMEESTER OUDLAAN 50 city: ROTTERDAM postcode: 3062 PA contact info Titolo: Mr. Nome: Eugene Cognome: Sophia Email: send email Telefono: +31 10 4089567 Fax: +31 10 4089094	NL (ROTTERDAM)	participant	76˙342.50
8	WORLD HEALTH ORGANIZATION.  Organization address address: Avenue Appia 20 city: GENEVE postcode: 1211 contact info Titolo: Dr. Nome: Clive Cognome: Ondari Email: send email Telefono: +41 22 79 13676	CH (GENEVE)	participant	75˙360.00
9	THE UNIVERSITY OF SHEFFIELD  Organization address address: FIRTH COURT WESTERN BANK city: SHEFFIELD postcode: S10 2TN contact info Titolo: Ms. Nome: Joanne Cognome: Watson Email: send email Telefono: +44 114 222 4754 Fax: +44 114 222 1455	UK (SHEFFIELD)	participant	45˙000.00
10	ASSOCIAZIONE EUROPEA PER LE CURE PALLIATIVE  Organization address address: Via Venezian 1 city: MILANO postcode: 20133 contact info Titolo: Mrs. Nome: Heidi Cognome: Blumhuber Email: send email Telefono: 393336000000	IT (MILANO)	participant	20˙280.00
11	ICAHN SCHOOL OF MEDICINE AT MOUNT SINAI  Organization address address: ONE GUSTAVE L LEVY PLACE BOX 1075 city: NEW YORK postcode: 10029 6574 contact info Titolo: Mrs. Nome: Ellen Cognome: Miller Email: send email Telefono: 12122411802	US (NEW YORK)	participant	17˙700.00

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 Obiettivo del progetto (Objective)

'Integrated delivery systems of care, e.g. networks of health organizations and professionals who work together to coordinate services to meet their patients’ needs, are an important way of linking fragmented services and maximizing system efficiency and seamlessness of patient transition. Research increasingly shows that patients with advanced cancer and advanced chronic disease are treated well by integrated palliative care pathways, with comparable quality of care at lower costs. Palliative care involves the multidisciplinary care for patients in the last phase of life-threatening disease and is expected to largely grow due to the ageing of the European population. However, palliative care in Europe is still mostly organized across institutional lines: hospital, home care, hospice. This project aims at the identification of best practices in integrated palliative care with regard to quality of life and quality of care. Mixed methods will be used to identify models for integrated palliative care in Europe and to assess patient/caregiver experiences and perceptions within these pathways at the one hand and organizational, managerial, financial and regulatory aspects of these integrated pathways at the other hand. The project will evaluate existing initiatives for patients with cancer, COPD and CHF, and will deliver recommendations on (requirements for) best practices in integrated palliative care. This will also include recommendations on (changes in) skill mix of health professionals. Results will be disseminated via conferences, articles, and an interactive website including an e-learning module. This project will contribute vastly to the improvement of the (organization of) care for patients with advanced cancer and chronic disease and can be extrapolated to other patients with complex care needs.'

Introduzione (Teaser)

Palliative care can help improve the quality of life for people with serious illnesses. An EU-funded project is developing a model of integrated palliative care.

Descrizione progetto (Article)

The project 'Patient-centred palliative care pathways in advanced cancer and chronic disease' (http://www.insup-c.eu/ (INSUP-C)) is focused on individuals with advanced cancer, advanced stages of chronic obstructive pulmonary disease or congestive heart failure. The goal is to provide these patients and their caregivers access to appropriate palliative care at the desired place of treatment, together with improved communication, cooperation and coordination within integrated care settings.

To achieve this goal, the project will investigate and compare initiatives in integrated palliative care across Europe to identify the requirements for best/good and promising practices. Research involves a literature review to identify existing integrated palliative care initiatives for patients, followed by a study of those integrated initiatives.

To date, the team has found only a few models of integrated palliative care. The ones that do exist, however, stress the benefits of a team approach introduced to patients earlier in their disease trajectory.

Similarly, the level of integration of palliative care is skewed. Most highlight the timing of care and stress a holistic approach, but advance care planning, recommendations for grief and bereavement, and assessments of patients' goals are limited. Finally, the team has developed a draft of a taxonomy for integrated palliative care.

The project has built a website to store documents, report on coming events and record activities. In time, the website will also host an e-learning platform and benchmarking tools.

This work has the potential to strengthen palliative care across Europe by facilitating learning on the job with the help of respected experts. The availability of best practices will help guide health policy decision making.

Both patients and their caregivers will benefit from more effective integrated palliative care strategies. More patients will be able to stay in their preferred place throughout their illness, and their caregivers will have more support. Ultimately, the research will add to scientific evidence on the optimal organisation of integrated palliative care in Europe.