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GCOF

A stepping stone approach towards the Genetics Clinic of the Future

Total Cost €

EC-Contrib. €

Partnership

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Outcomes and
results

GCOF project word cloud

Explore the words cloud of the GCOF project. It provides you a very rough idea of what is the project "GCOF" about.

countries exploring patient wp1 centres versa stakeholders wp6 wp2 strategy clinical civil genome outlining integrates health learning ethics representation exchange outcomes responsible public offers law variety establishments organisation connects science consent gcof framework wp5 implements bioinformatics responsive wp4 services clinic types practices core parallel genomics engagement envisioning commercial recommendations education technologies initiating businesses brings care policy personalised reflection models 12 involvement vice stakeholder data society dimensions innovation mutual genetics mapping social engaging ethical makers establishes considering stepping wp3 breadth communication stone

Project "GCOF" data sheet

The following table provides information about the project.

Coordinator	UNIVERSITAIR MEDISCH CENTRUM UTRECHT Organization address address: HEIDELBERGLAAN 100 city: UTRECHT postcode: 3584 CX website: www.umcutrecht.nl contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.
Coordinator Country	Netherlands [NL]
Project website	http://geneticsclinicofthefuture.eu
Total cost	1˙195˙106 €
EC max contribution	1˙195˙106 € (100%)
Programme	1. H2020-EU.3.1. (SOCIETAL CHALLENGES - Health, demographic change and well-being)
Code Call	H2020-HCO-2014
Funding Scheme	CSA
Starting year	2015
Duration (year-month-day)	from 2015-01-01 to 2017-06-30

Partnership

Take a look of project's partnership.

#	participants	country	role	EC contrib. [€]
1	UNIVERSITAIR MEDISCH CENTRUM UTRECHT UNIVERSITAIR MEDISCH CENTRUM UTRECHT Organization address address: HEIDELBERGLAAN 100 city: UTRECHT postcode: 3584 CX website: www.umcutrecht.nl contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	NL (UTRECHT)	coordinator	201˙250.00
2	UNIVERSITY OF LEICESTER UNIVERSITY OF LEICESTER Organization address address: UNIVERSITY ROAD city: LEICESTER postcode: LE1 7RH website: www.le.ac.uk contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	UK (LEICESTER)	participant	134˙250.00
3	UNIVERSIDADE NOVA DE LISBOA UNIVERSIDADE NOVA DE LISBOA Organization address address: CAMPUS DE CAMPOLIDE city: LISBOA postcode: 1099 085 website: n.a. contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	PT (LISBOA)	participant	127˙500.00
4	TERVEYDEN JA HYVINVOINNIN LAITOS TERVEYDEN JA HYVINVOINNIN LAITOS Organization address address: MANNERHEIMINTIE 166 city: HELSINKI postcode: 271 website: www.thl.fi contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	FI (HELSINKI)	participant	105˙312.00
5	THE CHANCELLOR, MASTERS AND SCHOLARS OF THE UNIVERSITY OF OXFORD THE CHANCELLOR, MASTERS AND SCHOLARS OF THE UNIVERSITY OF OXFORD Organization address address: WELLINGTON SQUARE UNIVERSITY OFFICES city: OXFORD postcode: OX1 2JD website: www.ox.ac.uk contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	UK (OXFORD)	participant	102˙500.00
6	OPEN SCIENCE - LEBENSWISSENSCHAFTENIM DIALOG VEREIN OPEN SCIENCE - LEBENSWISSENSCHAFTENIM DIALOG VEREIN Organization address address: RENNWEG 95B city: Vienna postcode: 1030 website: www.dialog-gentechnik.at contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	AT (Vienna)	participant	92˙187.00
7	OBSERVA ASSOCIAZIONE OBSERVA ASSOCIAZIONE Organization address address: VIALE A FUSINIERI 65 city: VICENZA postcode: 36100 website: www.scienceinsociety.eu contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	IT (VICENZA)	participant	85˙000.00
8	EURORDIS - EUROPEAN ORGANISATION FOR RARE DISEASES ASSOCIATION EURORDIS - EUROPEAN ORGANISATION FOR RARE DISEASES ASSOCIATION Organization address address: RUE DIDOT 96 city: Paris postcode: 75014 website: www.eurordis.org contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	FR (Paris)	participant	72˙543.00
9	BIO.LOGIS GENETIC INFORMATION MANAGEMENT GMBH BIO.LOGIS GENETIC INFORMATION MANAGEMENT GMBH Organization address address: ALTENHOFERALLEE 3 city: FRANKFURT postcode: 60438 website: n.a. contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	DE (FRANKFURT)	participant	72˙500.00
10	INSTITUTET FOR FREMTIDSFORSKNING FORENING INSTITUTET FOR FREMTIDSFORSKNING FORENING Organization address address: LANDGREVEN 3 1 TH city: KOBENHAVN postcode: 1301 website: www.cifs.dk/en/omcifs2.asp contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	DK (KOBENHAVN)	participant	70˙000.00
11	SCHUURBIERS DANIEL SCHUURBIERS DANIEL Organization address address: JOSEF ISRAELSLAAN 63 city: ARNHEM postcode: 6813JB website: www.proeffabriek.nl contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	NL (ARNHEM)	participant	67˙062.00
12	AGILENT TECHNOLOGIES BELGIUM NV AGILENT TECHNOLOGIES BELGIUM NV Organization address address: DE KLEETLAAN 5 city: DIEGEM postcode: 1831 website: http://www.ict-samurai.eu/ contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	BE (DIEGEM)	participant	65˙000.00
13	CARTAGENIA NV CARTAGENIA NV Organization address address: TECHNOLOGIELAAN 3 city: LEUVEN postcode: 3001 website: www.cartagenia.com contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	BE (LEUVEN)	participant	0.00
14	INSTITUTO DE TECNOLOGIA QUIMICA E BIOLOGICA - UNIVERSIDADE NOVA DE LISBOA INSTITUTO DE TECNOLOGIA QUIMICA E BIOLOGICA - UNIVERSIDADE NOVA DE LISBOA Organization address address: Avenida da Republica, Estacao Agronomica Nacional city: OEIRAS postcode: 2784-505 website: n.a. contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	PT (OEIRAS)	participant	0.00

Map

Project objective

The Genetics Clinic of the Future (GCOF) project aims to ensure that the clinical implementation of genome technologies is relevant and responsive to the needs of all. It offers a stepping stone approach towards the genetics clinic of the future, engaging all stakeholders involved in a process of mutual learning and information exchange.

The GCOF project implements key Science with and for Society issues, ensuring that ethical reflection and stakeholder involvement do not occur in parallel, but are effectively integrated in the core of the project. It establishes a robust communication and implementation strategy that integrates the project’s outcomes and recommendations in research and clinical practices and policy processes, outlining opportunities for a more responsive health research and innovation system by: 1. Envisioning the Genetics Clinic of the Future (WP1) 2. Mapping out the concept of data control (WP2) 3. Considering ethical and legal dimensions in the consent framework (WP3) 4. Exploring novel models for use of clinical data in research and vice versa (WP4) 5. Initiating public engagement, mutual learning and dissemination (WP5) 6. Engaging policy makers (WP6)

The consortium brings together 12 key partners from 10 countries across Europe who represent the breadth of stakeholders involved in the genetics clinic of the future: genomics research, clinical genetics, bioinformatics, public health, policy making, patient representation, education, commercial genetics and bioinformatics services, social research, communication, responsible innovation and ethics and law. The GCOF project connects to the major EU-initiatives in the field of personalised health and care. The consortium also represents a variety of organisation types, including research organisations, businesses, policy makers, civil society organisations, education establishments and science & society centres.

Deliverables

List of deliverables.
Report on health economic aspects of the GCOF	Documents, reports	2019-07-23 09:13:44
Report on mutual learning in the genetics clinic of the future	Documents, reports	2019-07-23 09:13:44
Report on future consent needs, and an updated consent framework for the GCOF	Documents, reports	2019-07-23 09:13:44
Web-based overview of consent templates and frameworks that are currently in practice in various sectors working with privacy-sensitive data	Websites, patent fillings, videos etc.	2019-07-23 09:13:44
Database containing simulated whole-exome or whole-genome sequencing data from 5-10 individuals	Other	2019-07-23 09:13:44
Evaluation report of the GCOF simulations	Documents, reports	2019-07-23 09:13:44
GCOF portal	Websites, patent fillings, videos etc.	2019-07-23 09:13:44
Survey on patient involvement in design of data control mechanisms	Websites, patent fillings, videos etc.	2019-07-23 09:13:44
Report on novel approaches to data access, including background study results and workshop report	Documents, reports	2019-07-23 09:13:44
Discussion guide for public focus groups	Websites, patent fillings, videos etc.	2019-07-23 09:13:44
Document describing outcome of stakeholder-engagement workshop identifying potential policy options	Documents, reports	2019-07-23 09:13:44
Supporting materials for mutual learning event of experts including ambassadors	Websites, patent fillings, videos etc.	2019-07-23 09:13:44
Report on existing tools for collection, storage and distribution of clinical data, with best practice guideline on reporting results from research	Documents, reports	2019-07-23 09:13:44
Interim report to the European Commission	Documents, reports	2019-07-23 09:13:44
White paper on patient perspectives with recommendations for novel approaches of collection, storage and distribution of clinical genomic data on rare and common diseases	Documents, reports	2019-07-23 09:13:44

Take a look to the deliverables list in detail: detailed list of GCOF deliverables.

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The information about "GCOF" are provided by the European Opendata Portal: CORDIS opendata.