Explore the words cloud of the EUROlinkCAT project. It provides you a very rough idea of what is the project "EUROlinkCAT" about.
The following table provides information about the project.
Coordinator |
ST GEORGE'S HOSPITAL MEDICAL SCHOOL
Organization address contact info |
Coordinator Country | United Kingdom [UK] |
Project website | https://www.eurolinkcat.eu/ |
Total cost | 7˙348˙072 € |
EC max contribution | 7˙348˙072 € (100%) |
Programme |
1. H2020-EU.3.1.1. (Understanding health, wellbeing and disease) |
Code Call | H2020-SC1-2016-RTD |
Funding Scheme | RIA |
Starting year | 2017 |
Duration (year-month-day) | from 2017-01-01 to 2021-12-31 |
Take a look of project's partnership.
Over 130,000 children born in Europe every year will have a congenital anomaly (CA; birth defect). These CAs, which are often rare diseases, are a major cause of infant mortality, childhood morbidity and long-term disability. EUROCAT is an established European network of population-based registries for the epidemiologic surveillance of CAs. EUROlinkCAT will use the EUROCAT infrastructure to support 21 EUROCAT registries in 13 European countries to link their CA data to mortality, hospital discharge, prescription and educational databases. Each registry will send standard aggregate tables and analysis results to a Central Results Repository (CRR) thus respecting data security issues surrounding sensitive data. The CRR will contain standardised summary data and analyses on an estimated 200,000 children with a CA born from 1995 to 2014 up to age 10, enabling hypotheses on their health and education to be investigated at an EU level. This enhanced information will allow optimisation of personalised care and treatment decisions for children with rare CAs. Registries will be supported in using social media platforms to connect with families who live with CAs in their regions. A novel sustainable e-forum, “ConnectEpeople”, will link these families with local, national and international registries and information resources. ConnectEpeople will involve these families in setting research priorities and ensuring a meaningful dissemination of results. Findings will provide evidence to inform national treatment guidelines, such as concerning screening programs, to optimise diagnosis, prevention and treatment for these children and reduce health inequalities in Europe. An economic evaluation of the hospitalisation costs associated with CA will be provided The CRR and associated documentation, including linkage and standardisation procedures and “ConnectEpeople” forum will be available post-EUROlinkCAT thus facilitating future local and EU level analyses.
Information Leaflet | Documents, reports | 2020-03-27 11:08:11 |
Build Website | Websites, patent fillings, videos etc. | 2020-03-27 11:08:11 |
Initial Website Online | Websites, patent fillings, videos etc. | 2020-03-27 11:08:11 |
Formation of e stakeholder forum “ConnectEpeople†| Documents, reports | 2020-03-27 11:08:11 |
Take a look to the deliverables list in detail: detailed list of EUROlinkCAT deliverables.
year | authors and title | journal | last update |
---|---|---|---|
2018 |
Maria Loane, James Densem, Joan Morris, Joachim Tan EUROlinkCAT: Common Data Model published pages: , ISSN: 2399-4908, DOI: 10.23889/ijpds.v3i2.537 |
International Journal of Population Data Science 3/2 | 2020-03-27 |
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The information about "EUROLINKCAT" are provided by the European Opendata Portal: CORDIS opendata.