#	Pagina
attuale pagina	/open-h2020/projects/212983/index.html

Opendata, web and dolomites

CareHD SIGNED

Patient Centered Connected Health Model of Care for Huntingtons Disease

Total Cost €

EC-Contrib. €

Partnership

Views

CareHD project word cloud

Explore the words cloud of the CareHD project. It provides you a very rough idea of what is the project "CareHD" about.

western stretched centred single stakeholders joining interventions multiple reducing inter optimise shared families diseases trajectory cells rd points connected optimising area difficulties efficient mental self modification patients disease assist levels ch gene international inform care occurring monitor people cure countries scarce progression hd stigma health huntington perspective network body intervention sectoral isolation symptom patient enabled actualisation ecosystem drivers empowerment faced quality monogentic outcomes alongside social life primary living

Project "CareHD" data sheet

The following table provides information about the project.

Coordinator	UNIVERSITY COLLEGE DUBLIN, NATIONAL UNIVERSITY OF IRELAND, DUBLIN Organization address address: BELFIELD city: DUBLIN postcode: 4 website: www.ucd.ie contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.
Coordinator Country	Ireland [IE]
Total cost	828˙000 €
EC max contribution	828˙000 € (100%)
Programme	1. H2020-EU.1.3.3. (Stimulating innovation by means of cross-fertilisation of knowledge)
Code Call	H2020-MSCA-RISE-2017
Funding Scheme	MSCA-RISE
Starting year	2018
Duration (year-month-day)	from 2018-07-01 to 2022-06-30

Partnership

Take a look of project's partnership.

#	participants	country	role	EC contrib. [€]
1	UNIVERSITY COLLEGE DUBLIN, NATIONAL UNIVERSITY OF IRELAND, DUBLIN UNIVERSITY COLLEGE DUBLIN, NATIONAL UNIVERSITY OF IRELAND, DUBLIN Organization address address: BELFIELD city: DUBLIN postcode: 4 website: www.ucd.ie contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	IE (DUBLIN)	coordinator	247˙500.00
2	NATIONAL UNIVERSITY OF IRELAND MAYNOOTH NATIONAL UNIVERSITY OF IRELAND MAYNOOTH Organization address address: CO KILDARE city: Maynooth postcode: W23 website: www.nuim.ie contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	IE (Maynooth)	participant	121˙500.00
3	THE UNIVERSITY OF READING THE UNIVERSITY OF READING Organization address address: WHITEKNIGHTS CAMPUS WHITEKNIGHTS HOUSE city: READING postcode: RG6 6AH website: http://www.rdg.ac.uk contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	UK (READING)	participant	121˙500.00
4	ICON CLINICAL RESEARCH ICON CLINICAL RESEARCH Organization address address: 55, rue des Champs Pierreux. Immeuble Le Capitole city: Nanterre postcode: 92000 website: n.a. contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	FR (Nanterre)	participant	94˙500.00
5	HUNTINGTON'S DISEASE ASSOCIATION OF IRELAND HUNTINGTON'S DISEASE ASSOCIATION OF IRELAND Organization address address: CARMICHAEL HOUSE NORTH BRUNSWICK STREET city: DUBLIN postcode: D07 RHA8 website: n.a. contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	IE (DUBLIN)	participant	81˙000.00
6	COMTRADE PROGRAMSKE RESITVE DOO COMTRADE PROGRAMSKE RESITVE DOO Organization address address: LETALISKA CESTA 29B city: LJUBLJANA postcode: 1000 website: n.a. contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	SI (LJUBLJANA)	participant	54˙000.00
7	THE SCOTTISH HUNTINGTON S ASSOCIATION THE SCOTTISH HUNTINGTON S ASSOCIATION Organization address address: BUSINESS FIRST, LINWOOD POINT RENFREWSHIRE city: PAISLEY postcode: PA1 2FB website: n.a. contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	UK (PAISLEY)	participant	40˙500.00
8	UNIVERSITY COLLEGE LONDON HOSPITALSNHS FOUNDATION TRUST UNIVERSITY COLLEGE LONDON HOSPITALSNHS FOUNDATION TRUST Organization address address: EUSTON ROAD 250 city: LONDON postcode: NW1 2PG website: n.a. contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	UK (LONDON)	participant	40˙500.00
9	ICON CLINICAL RESEARCH LIMITED ICON CLINICAL RESEARCH LIMITED Organization address address: SOUTH COUNTY BUSINESS PARK LEOPARDSTOWN city: DUBLIN postcode: 18 website: n.a. contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	IE (DUBLIN)	participant	27˙000.00
10	THE UNIVERSITY COURT OF THE UNIVERSITY OF ABERDEEN THE UNIVERSITY COURT OF THE UNIVERSITY OF ABERDEEN Organization address address: KING'S COLLEGE REGENT WALK city: ABERDEEN postcode: AB24 3FX website: http://www.abdn.ac.uk contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	UK (ABERDEEN)	participant	0.00

Map

Project objective

HD is a monogentic disease, meaning modification in a single gene occurring in all cells of the body. In Western countries it is estimated that 5-7 people per 100,000 are affected by HD. Currently there is no cure for the disease and effective management is key to quality of life for those who are affected. Patients and families who are living with the disease face multiple social and self-management issues. For example, stigma of the disease alongside social isolation have been key drivers in terms of high levels of mental health difficulties. CH has the ability to assist with many of the difficulties faced by HD, RD and indeed other symptom related diseases. For example, CH can monitor and identify key intervention points along the disease progression pathway, it can inform and facilitate integrated care, it can assist with joining key stakeholders together in a shared ecosystem, and importantly it can assist patients and their families in terms of reducing isolation, optimising self-management and thus increasing empowerment and self-actualisation. Further, CH has the ability to optimise scarce resources in an over stretched health care system and thus produce effective and efficient outcomes. The primary aim of this RISE project is to establish an international and inter-sectoral network of organisations working in collaboration on a research project which seeks to design a technology enabled patient centred care pathway which will identify how to optimise Connected Health (CH) interventions at key points along Huntington’s Disease (HD) trajectory. This is an important project because patient centred care from a CH perspective in the area of HD is currently under developed. This project aims to develop a new pathway of patient care based upon a better understanding of what type of technology can assist patients with improving their quality of life at various key points along the care pathway.

Deliverables

List of deliverables.
Exemplar patient Vignettes	Documents, reports	2019-11-22 11:18:22
Ethics and data protection protocol	Documents, reports	2019-11-22 11:18:22
Establishment of Integration Working Group	Documents, reports	2019-11-22 11:18:22
Care pathway methodology protocol	Documents, reports	2019-11-22 11:18:22
Dissemination Advisory Group (DAG)	Documents, reports	2019-11-22 11:18:22
Management protocol and project tracker	Documents, reports	2019-11-22 11:18:22

Take a look to the deliverables list in detail: detailed list of CareHD deliverables.

Are you the coordinator (or a participant) of this project? Plaese send me more information about the "CAREHD" project.

For instance: the website url (it has not provided by EU-opendata yet), the logo, a more detailed description of the project (in plain text as a rtf file or a word file), some pictures (as picture files, not embedded into any word file), twitter account, linkedin page, etc.

Send me an email (fabio@fabiodisconzi.com) and I put them in your project's page as son as possible.

Thanks. And then put a link of this page into your project's website.

The information about "CAREHD" are provided by the European Opendata Portal: CORDIS opendata.