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Opendata, web and dolomites

MyCyFAPP

Innovative approach for self-management and social welfare of Cystic Fibrosis patients in Europe: development, validation and implementation of a telematics tool.

Total Cost €

EC-Contrib. €

Partnership

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Outcomes and
results

MyCyFAPP project word cloud

Explore the words cloud of the MyCyFAPP project. It provides you a very rough idea of what is the project "MyCyFAPP" about.

innovative insufficiency empowerment guarantees smes competitiveness lifelong healthy stages 5 monitoring economic prevention patient secondary participating outcome adherence designed families disease patients fibrosis market multidisciplinary maldigestion arises integrative professionals nutritional self beneficiaries cf complementary childhood decision mortality food competitive welfare boosting treatment health majority co lifestyle care stunting ict cystic accurate mainly genetic validated comprise app replacement tool status commercial portable incidence avoiding intervention complications showing enzyme suffer socio benefit malnutrition pancreatic intertwining consequently clinically mycyfapp training malabsorption education givers

Project "MyCyFAPP" data sheet

The following table provides information about the project.

Coordinator	FUNDACION PARA LA INVESTIGACION DEL HOSPITAL UNIVERSITARIO LA FE DE LA COMUNIDAD VALENCIANA Organization address address: AV FERNANDO ABRIL MARTORELL 106 city: VALENCIA postcode: 46026 website: http://www.iislafe.es contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.
Coordinator Country	Spain [ES]
Project website	http://www.mycyfapp.eu
Total cost	5˙087˙507 €
EC max contribution	5˙087˙507 € (100%)
Programme	1. H2020-EU.3.1.4. (Active ageing and self-management of health)
Code Call	H2020-PHC-2014-single-stage
Funding Scheme	RIA
Starting year	2015
Duration (year-month-day)	from 2015-01-01 to 2018-12-31

Partnership

Take a look of project's partnership.

#	participants	country	role	EC contrib. [€]
1	FUNDACION PARA LA INVESTIGACION DEL HOSPITAL UNIVERSITARIO LA FE DE LA COMUNIDAD VALENCIANA FUNDACION PARA LA INVESTIGACION DEL HOSPITAL UNIVERSITARIO LA FE DE LA COMUNIDAD VALENCIANA Organization address address: AV FERNANDO ABRIL MARTORELL 106 city: VALENCIA postcode: 46026 website: http://www.iislafe.es contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	ES (VALENCIA)	coordinator	1˙316˙451.00
2	STIFTELSEN SINTEF STIFTELSEN SINTEF Organization address address: STRINDVEIEN 4 city: TRONDHEIM postcode: 7034 website: www.sintef.no contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	NO (TRONDHEIM)	participant	661˙325.00
3	UNIVERSITAT POLITECNICA DE VALENCIA UNIVERSITAT POLITECNICA DE VALENCIA Organization address address: CAMINO DE VERA SN EDIFICIO 3A city: VALENCIA postcode: 46022 website: www.upv.es contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	ES (VALENCIA)	participant	619˙674.00
4	KATHOLIEKE UNIVERSITEIT LEUVEN KATHOLIEKE UNIVERSITEIT LEUVEN Organization address address: OUDE MARKT 13 city: LEUVEN postcode: 3000 website: www.kuleuven.be contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	BE (LEUVEN)	participant	526˙375.00
5	ERASMUS UNIVERSITAIR MEDISCH CENTRUM ROTTERDAM ERASMUS UNIVERSITAIR MEDISCH CENTRUM ROTTERDAM Organization address address: DR MOLEWATERPLEIN 40 city: ROTTERDAM postcode: 3015 GD website: www.erasmusmc.nl contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	NL (ROTTERDAM)	participant	342˙220.00
6	YOUSE GmbH YOUSE GmbH Organization address address: FLORASTRASSE 47 city: BERLIN postcode: 13187 website: n.a. contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	DE (BERLIN)	participant	336˙955.00
7	IMAGINARY SRL IMAGINARY SRL Organization address address: VIA MAURO MACCHI 50 city: MILANO postcode: 20124 website: www.i-maginary.it contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	IT (MILANO)	participant	331˙955.00
8	Associação para Investigação e Desenvolvimento da Faculdade de Medicina Associação para Investigação e Desenvolvimento da Faculdade de Medicina Organization address address: Av. Prof. Egas Moniz city: Lisbon postcode: 1649-028 website: n.a. contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	PT (Lisbon)	participant	318˙191.00
9	UNIVERSITA DEGLI STUDI DI MILANO UNIVERSITA DEGLI STUDI DI MILANO Organization address address: Via Festa Del Perdono 7 city: MILANO postcode: 20122 website: www.unimi.it contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	IT (MILANO)	participant	222˙665.00
10	SERVICIO MADRILENO DE SALUD SERVICIO MADRILENO DE SALUD Organization address address: PLAZA CARLOS TRIAS BERTRAN 7 city: MADRID postcode: 28020 website: http://cort.as/10Yf contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	ES (MADRID)	participant	130˙674.00
11	CYSTIC FIBROSIS EUROPE EV CYSTIC FIBROSIS EUROPE EV Organization address address: IN DEN DAUEN 6 city: BONN postcode: 53117 website: n.a. contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	DE (BONN)	participant	108˙816.00
12	SOLUCIONES TECNOLOGICAS PARA LA SALUD Y EL BIENESTAR SA SOLUCIONES TECNOLOGICAS PARA LA SALUD Y EL BIENESTAR SA Organization address address: RONDA AUGUSTE Y LOUIS LUMIERE 23 NAVE 13 PARQUE TECNOLOGICO DE VALENCIA city: PATERNA VALENCIA postcode: 46980 website: www.tsbtecnologias.es contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	ES (PATERNA VALENCIA)	participant	94˙700.00
13	SINTEF AS SINTEF AS Organization address address: STRINDVEGEN 4 city: TRONDHEIM postcode: 7034 website: n.a. contact info title: n.a. name: n.a. surname: n.a. function: n.a. email: n.a. telephone: n.a. fax: n.a.	NO (TRONDHEIM)	participant	77˙500.00

Map

Project objective

Cystic Fibrosis (CF) is a genetic disease with the higher incidence in Europe showing c.a. 5% mortality in childhood. The majority of patients suffer from lifelong pancreatic insufficiency leading to maldigestion of food and malabsorption and consequently with malnutrition and growth stunting. An accurate enzyme replacement arises as an early nutritional intervention able to provide better nutritional status and patients’ welfare from early stages avoiding complications associated to the development of the disease. By means of our innovative and portable ICT tool we will improve the socio-economic impact of the disease, promoting healthy lifestyle, intertwining patient empowerment, education and training with self-management and prevention of secondary CF-complications. The multidisciplinary and complementary approach of this co-developed integrative PROJECT guarantees the patient’s adherence to the treatment and the best outcome of the nutritional intervention mainly in childhood. The beneficiaries of the application comprise patients, care-givers, families and health professionals as well as health monitoring authorities. MyCyFAPP is tailored designed and will be clinically validated for CF self-management and monitoring becoming a competitive market product in Europe. This APP will have a key role as decision support system, boosting the growth and competitiveness of the participating SMEs in Europe which will ensure the commercial exploitation of the results, the market uptake and the MyCyFAPP distribution for the benefit of the patient.

Deliverables

List of deliverables.
Document on MyCyFAPP poster and leaflet	Documents, reports	2019-11-28 15:55:54
2nd mid-term dissemination report	Documents, reports	2019-11-28 15:55:54
Training material	Documents, reports	2019-11-28 15:55:54
Clipping and press release	Documents, reports	2019-11-28 15:55:54
Final Dissemination report	Documents, reports	2019-11-28 15:55:54
Interviews	Documents, reports	2019-11-28 15:55:54
Register follow-up on conferences and meetings	Documents, reports	2019-11-28 15:55:54
WP Planning and Contingency Reports	Documents, reports	2019-11-28 15:55:54
1st Mid-Term Dissemination plan of MyCyFAPP	Documents, reports	2019-11-28 15:55:54
Minutes of the 3rd EBM	Documents, reports	2019-11-28 15:55:54
1st Annual Progress and Annual Financial Report to the Commission	Documents, reports	2019-11-28 15:55:54
Minutes of the 2nd EBM and 1st General Assambly Meeting (GAM)	Documents, reports	2019-11-28 15:55:54
Dissemination plan of MyCyFAPP	Documents, reports	2019-11-28 15:55:54
Nutritional Evaluation report of all the collected FRs	Documents, reports	2019-11-28 15:55:53
Minutes of the 1st Executive Board Meeting (EBM)	Documents, reports	2019-11-28 15:55:53
Nutritional Recommendations Guideline for the CF patients	Documents, reports	2019-11-28 15:55:53
MyCyFAPP press release	Documents, reports	2019-11-28 15:55:53
Data base with the FRs	Other	2019-11-28 15:55:53
Protocol for the survey and the FR	Documents, reports	2019-11-28 15:55:53
Nutritional composition database of the selected dishes	Other	2019-11-28 15:55:53
Characterisation of dishes report	Documents, reports	2019-11-28 15:55:53
Kick-off Meeting	Documents, reports	2019-11-28 15:55:53

Take a look to the deliverables list in detail: detailed list of MyCyFAPP deliverables.

Publications

List of publications.
year	authors and title	journal	last update
2019	Joaquim Calvo-Lerma, Jessie Hulst, Mieke Boon, Tiago Martins, Mar Ruperto, Carla Colombo, Victoria FornÃ©s-Ferrer, Sandra Woodcock, Ine Claes, InÃªs Asseiceira, MarÃa Garriga, Anna Bulfamante, Etna Masip, Sylvia Walet, Paula Crespo, Lauretta Valmarana, Sandra MartÃnez-Barona, Luisa Pereira, Kris de Boeck, Carmen Ribes-Koninckx The Relative Contribution of Food Groups to Macronutrient Intake in Children with Cystic Fibrosis: A European Multicenter Assessment published pages: 1305-1319, ISSN: 2212-2672, DOI: 10.1016/j.jand.2019.01.003	Journal of the Academy of Nutrition and Dietetics 119/8	2019-11-28
2018	Jacqueline Floch, Annabel Zettl, Lena Fricke, Tina Weisser, Lisbet Grut, Thomas Vilarinho, Erlend Stav, Antonio Ascolese, Cornelia Schauber User Needs in the Development of a Health App Ecosystem for Self-Management of Cystic Fibrosis: User-Centered Development Approach published pages: e113, ISSN: 2291-5222, DOI: 10.2196/mhealth.8236	JMIR mHealth and uHealth 6/5	2019-11-28
2019	Joaquim Calvo-Lerma, Victoria FornÃ©s-Ferrer, Irene Peinado, Ana Heredia, Carmen Ribes-Koninckx, Ana AndrÃ©s A first approach for an evidence-based in vitro digestion method to adjust pancreatic enzyme replacement therapy in cystic fibrosis published pages: e0212459, ISSN: 1932-6203, DOI: 10.1371/journal.pone.0212459	PLOS ONE 14/2	2019-11-28
2019	Antonio Martinez-Millana, Annabel Zettl, Jacqueline Floch, Joaquim Calvo-Lerma, Jose Luis Sevillano, Carmen Ribes-Koninckx, Vicente Traver The Potential of Self-Management mHealth for Pediatric Cystic Fibrosis: Mixed-Methods Study for Health Care and App Assessment published pages: e13362, ISSN: 2291-5222, DOI: 10.2196/13362	JMIR mHealth and uHealth 7/4	2019-11-28
2019	A. Asensio-Grau, I. Peinado, A. Heredia, A. AndrÃ©s In vitro study of cheese digestion: Effect of type of cheese and intestinal conditions on macronutrients digestibility published pages: 108278, ISSN: 0023-6438, DOI: 10.1016/j.lwt.2019.108278	LWT 113	2019-11-28
2017	Joaquim Calvo-Lerma, Celia P Martinez-Jimenez, Juan-Pablo LÃ¡zaro-Ramos, Ana AndrÃ©s, Paula Crespo-Escobar, Erlend Stav, Cornelia Schauber, Lucia Pannese, Jessie M Hulst, Lucrecia SuÃ¡rez, Carla Colombo, Celeste Barreto, Kris de Boeck, Carmen Ribes-Koninckx Innovative approach for self-management and social welfare of children with cystic fibrosis in Europe: development, validation and implementation of an mHealth tool (MyCyFAPP) published pages: e014931, ISSN: 2044-6055, DOI: 10.1136/bmjopen-2016-014931	BMJ Open 7/3	2019-11-28
2019	Joaquim Calvo-Lerma, Victoria FornÃ©s-Ferrer, Ana Heredia, Ana AndrÃ©s In vitro digestion models to assess lipolysis: The impact of the simulated conditions of gastric and intestinal pH, bile salts and digestive fluids published pages: 108511, ISSN: 0963-9969, DOI: 10.1016/j.foodres.2019.108511	Food Research International 125	2019-11-28
2018	Andrea Asensio-Grau, Irene Peinado, Ana Heredia, Ana AndrÃ©s Effect of cooking methods and intestinal conditions on lipolysis, proteolysis and xanthophylls bioaccessibility of eggs published pages: 579-586, ISSN: 1756-4646, DOI: 10.1016/j.jff.2018.05.025	Journal of Functional Foods 46	2019-11-28
2019	Carolina Paz-YÃ©pez, Irene Peinado, Ana Heredia, Ana AndrÃ©s Lipids digestibility and polyphenols release under in vitro digestion of dark, milk and white chocolate published pages: 196-203, ISSN: 1756-4646, DOI: 10.1016/j.jff.2018.10.028	Journal of Functional Foods 52	2019-11-28
2019	Andrea Asensio-Grau, Joaquim Calvo-Lerma, Ana Heredia, Ana AndrÃ©s Fat digestibility in meat products: influence of food structure and gastrointestinal conditions published pages: 530-539, ISSN: 0963-7486, DOI: 10.1080/09637486.2018.1542665	International Journal of Food Sciences and Nutrition 70/5	2019-11-28
2018	Joaquim Calvo-Lerma, Victoria FornÃ©s-Ferrer, Ana Heredia, Ana AndrÃ©s In Vitro Digestion of Lipids in Real Foods: Influence of Lipid Organization Within the Food Matrix and Interactions with Nonlipid Components published pages: 2629-2637, ISSN: 0022-1147, DOI: 10.1111/1750-3841.14343	Journal of Food Science 83/10	2019-11-28
2017	Joaquim Calvo-Lerma, Jessie M. Hulst, InÃªs Asseiceira, Ine Claes, Maria Garriga, Carla Colombo, Victoria FornÃ©s, Sandra Woodcock, Tiago Martins, Mieke Boon, Mar Ruperto, Sylvia Walet, Chiara Speziali, Peter Witters, Etna Masip, Celeste Barreto, Kris de Boeck, Carmen Ribes-Koninckx Nutritional status, nutrient intake and use of enzyme supplements in paediatric patients with Cystic Fibrosis; a European multicentre study with reference to current guidelines published pages: 510-518, ISSN: 1569-1993, DOI: 10.1016/j.jcf.2017.03.005	Journal of Cystic Fibrosis 16/4	2019-11-28
2018	Antonio Martinez-Millana, Jessie M. Hulst, Mieke Boon, Peter Witters, Carlos Fernandez-Llatas, Ines Asseiceira, Joaquin Calvo-Lerma, Ignacio Basagoiti, Vicente Traver, Kris De Boeck, Carmen Ribes-Koninckx Optimisation of children z-score calculation based on new statistical techniques published pages: e0208362, ISSN: 1932-6203, DOI: 10.1371/journal.pone.0208362	PLOS ONE 13/12	2019-11-28
2019	Carolina Paz-YÃ©pez, Irene Peinado, Ana Heredia, Ana AndrÃ©s Influence of particle size and intestinal conditions on in vitro lipid and protein digestibility of walnuts and peanuts published pages: 951-959, ISSN: 0963-9969, DOI: 10.1016/j.foodres.2018.11.014	Food Research International 119	2019-11-28
2019	Joaquim Calvo-Lerma, Jessie Hulst, Mieke Boon, Carla Colombo, Etna Masip, Mar Ruperto, Victoria FornÃ©s-Ferrer, Els van der Wiel, Ine Claes, Maria Garriga, Maria Roca, Paula Crespo-Escobar, Anna Bulfamante, Sandra Woodcock, Sandra MartÃnez-Barona, Ana AndrÃ©s, Kris de Boeck, Carmen Ribes-Koninckx Clinical validation of an evidence-based method to adjust Pancreatic Enzyme Replacement Therapy through a prospective interventional study in paediatric patients with Cystic Fibrosis published pages: e0213216, ISSN: 1932-6203, DOI: 10.1371/journal.pone.0213216	PLOS ONE 14/3	2019-11-28
2019	M. Boon, J. Calvo-Lermo, I. Claes, T. Havermans, V. Fornes, I. Asseiceira, A. Bulfamente, M. Garriga, E. Massip, S. Walet, C. Barreto, C. Colombo, P. Crespo, H.M. Janssens, M. Ruperto, J. Hulst, R. Nobili, L. Pereira, E. Van der Wiel, S. Vicente, K. De Boeck, C. Ribes-Koninckx ePS5.08 MyCyFAPP project: use of a mobile application for self-management of PERT improves gastrointestinal related quality of life in children with cystic fibrosis published pages: S52-S53, ISSN: 1569-1993, DOI: 10.1016/s1569-1993(19)30286-3	Journal of Cystic Fibrosis 18	2019-11-28
2018	M. Boon, I. Claes, T. Havermans, V. FornÃ©s-Ferrer, I. Asseiceira, A. Bulfamente, M. Garriga, E. Masip, S. Woodcock, S. Walet, C. Barreto, J. Calvo-Lerma, C. Colombo, P. Crespo, E. Van der Wiel, J. Hulst, S. Martinez-Barona, R. Nobili, L. Pereira, M. Ruperto, K. De Boeck, C. Ribes-Koninckx, MyCyFAPP study group WS12.6 MyCyFAPP project: validation of the PEDsQL GI symptom scale to evaluate gastro-intestinal symptoms in children with cystic fibrosis published pages: S23, ISSN: 1569-1993, DOI: 10.1016/s1569-1993(18)30189-9	Journal of Cystic Fibrosis 17	2019-11-28
2018	Irene Peinado, Virginia Larrea, Ana Heredia, Ana AndrÃ©s Lipolysis kinetics of milk-fat catalyzed by an enzymatic supplement under simulated gastrointestinal conditions published pages: 1-8, ISSN: 2212-4292, DOI: 10.1016/j.fbio.2018.02.011	Food Bioscience 23	2019-11-28

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