The project’s overall aim is to improve the health, development and quality of life of children and adults born very preterm (VPT, < 32 weeks of gestation) or very low birth weight (VLBW, < 1500g) – approximately 50 000 births each year in Europe – by establishing an ICT platform to integrate, harmonise and exploit the wealth of data from 20 European cohorts of VPT/VLBW children and adults and their families constituted from the early 1980s to the present, together with data from national registries.
VPT/VLBW births have higher risks of cerebral palsy, visual and auditory deficits, impaired cognitive ability, psychiatric disorders and social problems than infants born at term and account for more than a third of the health and educational budgets for children. They may also face higher risks of non-communicable disease as they age. There is emerging evidence of reduced mental health, quality of life, partnering, family life and employment chances and wealth in adulthood.
The platform will enable stratified sub-group analyses of sociodemographic and clinical characteristics, neonatal complications, and otherwise rare medical conditions that cannot be studied in national population cohorts. The broad temporal, geographic, cultural and health system diversity makes it possible to study the impact of socioeconomic and organisational contexts and determine the generalisability of outcomes for VPT/VLBW populations.
The RECAP platform creates a value chain to promote research and innovation using population cohorts, beginning with the integration of VPT/VLBW cohorts to the translation and dissemination of new knowledge. It will be based on a sustainable governance framework, state-of-the art data management and sharing technologies, tools to strengthen research capacity, a hypothesis-driven research agenda and broad stakeholder participation, including researchers, clinicians, educators, policy makers and very preterm children and adults and their families.
Deliverables
List of deliverables.
Report of cohort descriptions to aid future research
Documents, reports
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Go-online of the public project website and factsheet
Documents, reports
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The establishment of the EAHL-IAB interest group on governance of research
Other
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Workshop for project members on conceptual framework
Croci I, et al Capacità predittiva del questionario per i genitori PARCA-R in nati altamente pretermine ai due anni di età corretta rispetto allo sviluppo cognitivo misurato in età scolare. published pages: , ISSN: 1120-379X, DOI:
Ricerca & Pratica
2020-04-24
2018
Ayten Bilgin, Marina Mendonca, Dieter Wolke Preterm Birth/Low Birth Weight and Markers Reflective of Wealth in Adulthood: A Meta-analysis published pages: e20173625, ISSN: 0031-4005, DOI: 10.1542/peds.2017-3625
Pediatrics 142/1
2020-04-24
2018
Polina Girchenko, Soile Tuovinen, Marius Lahti-Pulkkinen, Jari Lahti, Katri Savolainen, Kati Heinonen, Riikka Pyhälä, Rebecca M. Reynolds, Esa Hämäläinen, Pia M. Villa, Eero Kajantie, Anu-Katriina Pesonen, Hannele Laivuori, Katri Räikkönen Maternal early pregnancy obesity and related pregnancy and pre-pregnancy disorders: associations with child developmental milestones in the prospective PREDO Study published pages: 995-1007, ISSN: 0307-0565, DOI: 10.1038/s41366-018-0061-x
International Journal of Obesity 42/5
2020-04-24
2018
Croci I, et al. Mortalità ed esiti ai 2 anni nei nati altamente pretermine: confronti temporali tra due coorti area-based in Lazio e Marche published pages: , ISSN: 1120-379X, DOI:
Ricerca & Pratica
2020-04-24
2018
Soile Tuovinen, Marius Lahti-Pulkkinen, Polina Girchenko, Jari Lipsanen, Jari Lahti, Kati Heinonen, Rebecca M. Reynolds, Esa Hämäläinen, Eero Kajantie, Hannele Laivuori, Anu-Katriina Pesonen, Pia M. Villa, Katri Räikkönen Maternal depressive symptoms during and after pregnancy and child developmental milestones published pages: 732-741, ISSN: 1091-4269, DOI: 10.1002/da.22756
Depression and Anxiety 35/8
2020-04-24
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The information about "RECAP PRETERM" are provided by the European Opendata Portal: CORDIS opendata.
More projects from the same programme (H2020-EU.3.1.1.)