ACTION

Advance Care Planning; an Innovative Palliative Care Intervention to Improve Quality of Life in Cancer Patients - a Multi-Centre Cluster Randomized Clinical Trial

 Coordinatore ERASMUS UNIVERSITAIR MEDISCH CENTRUM ROTTERDAM 

 Organization address address: 's Gravendijkwal 230
city: ROTTERDAM
postcode: 3015CE

contact info
Titolo: Mr.
Nome: J.Th.N. Koos
Cognome: Lubbe
Email: send email
Telefono: +31 10 703 84 84
Fax: +31 10 703 84 51

 Nazionalità Coordinatore Netherlands [NL]
 Sito del progetto http://www.action-acp.eu/
 Totale costo 6˙122˙871 €
 EC contributo 4˙784˙656 €
 Programma FP7-HEALTH
Specific Programme "Cooperation": Health
 Code Call FP7-HEALTH-2013-INNOVATION-1
 Funding Scheme CP-FP
 Anno di inizio 2013
 Periodo (anno-mese-giorno) 2013-12-01   -   2018-11-30

 Partecipanti

# participant  country  role  EC contrib. [€] 
1    ERASMUS UNIVERSITAIR MEDISCH CENTRUM ROTTERDAM

 Organization address address: 's Gravendijkwal 230
city: ROTTERDAM
postcode: 3015CE

contact info
Titolo: Mr.
Nome: J.Th.N. Koos
Cognome: Lubbe
Email: send email
Telefono: +31 10 703 84 84
Fax: +31 10 703 84 51

NL (ROTTERDAM) coordinator 1˙573˙657.00
2    VRIJE UNIVERSITEIT BRUSSEL

 Organization address address: PLEINLAAN 2
city: BRUSSEL
postcode: 1050

contact info
Titolo: Mr.
Nome: Nik
Cognome: Claesen
Email: send email
Telefono: 3226292210
Fax: 3226293640

BE (BRUSSEL) participant 658˙602.00
3    ISTITUTO PER LO STUDIO E LA PREVENZIONE ONCOLOGICA

 Organization address address: VIA COSIMO IL VECCHIO 2
city: Florence
postcode: 50139

contact info
Titolo: Dr.
Nome: Guido
Cognome: Miccinesi
Email: send email
Telefono: +39 0557972503
Fax: +39 0557972535

IT (Florence) participant 511˙225.00
4    Bolnisnica Golnik Klinicni oddelek za pljucne bolezni in alergijo

 Organization address address: GOLNIK 36
city: GOLNIK
postcode: 4204

contact info
Titolo: Mrs.
Nome: Lea
Cognome: Ulcnik
Email: send email
Telefono: +386 4 25 69 450
Fax: +386 4 25 69 442

SI (GOLNIK) participant 496˙864.00
5 KOBENHAVNS UNIVERSITET DK participant 487˙600.00
6    THE UNIVERSITY OF NOTTINGHAM

 Organization address address: University Park
city: NOTTINGHAM
postcode: NG7 2RD

contact info
Titolo: Mr.
Nome: Paul
Cognome: Cartledge
Email: send email
Telefono: +44 115 8466757
Fax: +44 115 9513633

UK (NOTTINGHAM) participant 386˙208.00
7    LANCASTER UNIVERSITY

 Organization address address: BAILRIGG
city: LANCASTER
postcode: LA1 4YW

contact info
Titolo: Mr.
Nome: Roderick
Cognome: O'brien
Email: send email
Telefono: +44 1524 592002

UK (LANCASTER) participant 364˙500.00
8    UNIVERSITAIR MEDISCH CENTRUM UTRECHT

 Organization address address: HEIDELBERGLAAN 100
city: UTRECHT
postcode: 3584 CX

contact info
Titolo: Prof.
Nome: Hans
Cognome: Van Delden
Email: send email
Telefono: +31 887559361

NL (UTRECHT) participant 306˙000.00

Mappa


 Word cloud

Esplora la "nuvola delle parole (Word Cloud) per avere un'idea di massima del progetto.

quality    endpoints    post    preferences    symptom    relatives    decision    communication    life    care    patients    months    health    acp    medical    inclusion    fill    randomized    symptoms    cancer   

 Obiettivo del progetto (Objective)

'Advanced cancer typically involves multiple symptoms and seriously affects patients´ quality of life. Anxiety and depression are common. Medical care for patients with advanced cancer should be aimed at symptom control, psychosocial support, spiritual needs, and practical issues. Patients’ preferences regarding care should be central. Open and respectful communication are of key importance, but have been found to be a challenge for health care professionals as well as patients and relatives. Advance care planning (ACP) is a formalised process of communication between patients, relatives and caregivers about patients’ care preferences. It raises awareness of the need to anticipate future deterioration of health. ACP can improve current and future health care decision making, provide patients with a sense of control, increase adequate symptom control and improve quality of life. This project aims to study the effects of formalized ACP on symptom burden and quality of life of patients with advanced cancer. In a phase III multicentre cluster randomized controlled trial at least 20 hospitals in 6 countries will be randomized to provide patients with advanced cancer with either ACP or ‘care as usual’. 1334 patients diagnosed with lung or stage IV colorectal cancer will be included. Patients will fill in questionnaires at inclusion, and at 2.5 and 4.5 months post-inclusion. A relative will fill in a questionnaire after the patient’s death. Use of medical care will be assessed through medical files. Primary endpoints are quality of life (QLQ-C30 emotional functioning) and symptoms at 2.5 months post-inclusion. Secondary endpoints are the extent to which care as received was in line with patients’ preferences, patients’ evaluation of the decision making process, quality of dying and cost-effectiveness of the intervention. Our project will assess the impact of ACP on quality of life, and contribute to improving comfort and quality of care for patients with advanced cancer.'

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