ETHICAL

"Promoting International Debate on Ethical Implications of Data collection, use and retention for Biometric and Medical Applications"

Coordinatore	FRAUNHOFER-GESELLSCHAFT ZUR FOERDERUNG DER ANGEWANDTEN FORSCHUNG E.V    more  Organization address address: Hansastrasse 27C city: MUENCHEN postcode: 80686 contact info Titolo: Mr. Nome: Walter Cognome: Krause Email: send email Telefono: -12052753 Fax: -12057574
Nazionalità Coordinatore	Germany [DE]
Totale costo	1˙080˙930 €
EC contributo	742˙394 €
Programma	FP7-SIS Specific Programme "Capacities": Science in society
Code Call	FP7-SCIENCE-IN-SOCIETY-2008-1
Funding Scheme	CSA-CA
Anno di inizio	2009
Periodo (anno-mese-giorno)	2009-01-01   -   2010-12-31

 Partecipanti

#	participant	country	role	EC contrib. [€]
1	FRAUNHOFER-GESELLSCHAFT ZUR FOERDERUNG DER ANGEWANDTEN FORSCHUNG E.V  Organization address address: Hansastrasse 27C city: MUENCHEN postcode: 80686 contact info Titolo: Mr. Nome: Walter Cognome: Krause Email: send email Telefono: -12052753 Fax: -12057574	DE (MUENCHEN)	coordinator	147˙159.20
2	ARACHNI OLOKLIROMENES EFARMOGES PLIROFORIKIS KAI ROMPOTIKIS EPE  Organization address address: ODOS FRAGKOKKLISIAS 58-60 city: MAROUSSI postcode: 15125 contact info Titolo: Ms. Nome: Elena Cognome: Tavlaki Email: send email Telefono: 302108000000 Fax: 302108000000	EL (MAROUSSI)	participant	135˙350.00
3	GEOIMAGING LIMITED  Organization address address: GEORGIOU SEFERI STR 6 OFFICE 102 city: LEFKOSIA postcode: 1075 contact info Titolo: Mr. Nome: Andreas Cognome: Stylianidis Email: send email Telefono: 35722447770 Fax: 35722374988	CY (LEFKOSIA)	participant	134˙172.00
4	EUROPEAN HEALTH TELEMATICS ASSOCIATION  Organization address address: RUE D'ARLON 50 city: BRUXELLES postcode: 1000 contact info Titolo: Mr. Nome: Marc Cognome: Lange Email: send email Telefono: -2301504 Fax: -22308410	BE (BRUXELLES)	participant	123˙226.50
5	IMPERIAL COLLEGE OF SCIENCE, TECHNOLOGY AND MEDICINE  Organization address address: SOUTH KENSINGTON CAMPUS EXHIBITION ROAD city: LONDON postcode: SW7 2AZ contact info Titolo: Mr. Nome: Shaun Cognome: Power Email: send email Telefono: +44(0)207 594 8773 Fax: +44(0)207 594 8609	UK (LONDON)	participant	110˙986.83
6	UNIVERSIDAD DE CHILE  Organization address address: Av. Libertador Bernardo O'Higgins 1058 city: SANTIAGO postcode: 10 contact info Titolo: Prof. Nome: Javier Cognome: Ruiz-Del-Solar Email: send email Telefono: 5629784207 Fax: 5626720162	CL (SANTIAGO)	participant	31˙050.00
7	Universiti Malaysia Sarawak  Organization address address: KOTA SAMARAHAN SARAWAK city: KOTA SAMARAHAN postcode: 94300 contact info Titolo: Prof. Nome: Alvin Cognome: Yeo Email: send email Telefono: 60198681936 Fax: 6082583764	MY (KOTA SAMARAHAN)	participant	31˙050.00
8	Palladin Institute of Biochemistry  Organization address address: Leontovicha street 9 city: Kyiv postcode: 1601 contact info Titolo: Dr. Nome: Oleksandr Cognome: Kuzmenko Email: send email Telefono: 380984000000 Fax: 380442000000	UA (Kyiv)	participant	29˙400.00

Mappa

 Word cloud

Esplora la "nuvola delle parole (Word Cloud) per avere un'idea di massima del progetto.

 Obiettivo del progetto (Objective)

'ETHICAL project has a set of concrete objectives to fulfil: 1. To formulate an international dialogue on ethical implications of data collection, use and retention in medical and biometric applications, in three specific themes: potential data misuse, development of a unique identifier and international standardisation of ethical requirements 2. To develop a guide on government – industry collaboration prerequisites concerning the data collection, use and retention in medical and biometric applications. 3. To develop a code of conduct for FP7 researchers, concerning the data collection, use and retention in medical and biometric applications. 4. To identify the set of ethical requirements for international biometric and medical data sharing. 5. To create synergies with SINAPSE e-community of National Ethics Councils.'

Introduzione (Teaser)

EU project identifies ethical breaches in information and sets up laws to protect citizens. Balancing security with secrecy in medicine and industry is seen as paramount.

Descrizione progetto (Article)

Ethical concerns about the use of personal data, particularly in an intensive information society that we live in today, have been increasing. In real terms security and privacy are at the core of information and communications technology advancements. By altering the landscape of services and applications, these achievements affect the quality of life and fundamental rights of European citizens.

The EU-funded Ethical project is enhancing the debate on ethical implications of data collection, use and retention in medical and biometric applications. The project is supporting the creation of a roadmap towards a secure environment without compromising human rights. It is encouraging critical reflection on the deep relationships between knowledge and democracy. The Ethical project is also coordinating international debate in many areas such as data collection, code of conduct for researchers and requirements for medical data sharing.

The scientific work carried out by the consortium of research partners is reflected in the detailed report on the implications of data collection, use and retention. The ethics of data sharing, for example, between government and industry have been examined and numerous examples have been gathered. This has resulted in a proposed list of checks and balances that help all parties adhere to privacy-related laws. It has also resulted in best practices for government-industry collaboration and recommendations for data sharing between both sides.

A study on ethical requirements for international biometric and medical data sharing has also been completed. It contains existing laws and guidelines on data sharing, principles for ethical data sharing, and ongoing debates. Benchmarks for privacy recognition and international privacy principles have also been proposed.

Once adopted, these findings and recommendations will ensure that Europeans can feel confident their fundamental rights concerning the treatment of data are respected. The findings will also balance medical and security priorities with the needs of citizens.